United Kingdom: Action for ME (AfME) news

[Binkie4]

https://www.actionforme.org.uk/gcoe-2025-webinar/

Genetics Centre of Excellence: update on recent research
9 May 2025


We’re hosting a webinar to share the latest updates from research linked to our Genetics Centre of Excellence.

Don't miss this chance to hear directly from the scientists leading important discoveries and to participate in an engaging Q&A session with patient and public representatives.

Date: Thursday 6 June

Time: 2pm to 3pm

The session will be chaired by our Chief Executive, Sonya Chowdhury. It will include two presentations followed by a Q&A with scientists and Public and Patient Involvement representatives.





The 6th June is a Friday.
Can anyone clarify the date of the webinar? @Andy.

 

[Andy]

The 6th June is a Friday.
Can anyone clarify the date of the webinar? @Andy.

I think it should be Thursday, so the 5th, but I'm double checking that and will update when I know for certain.

 

[Binkie4]

I think it should be Thursday, so the 5th, but I'm double checking that and will update when I know for certain.

Thank you.

 

[Andy]

Thank you.

I've been told that it is meant to be Friday 6th, and that the website will be corrected early next week.

 

[Binkie4]

Thanks @Andy.

 

[V.R.T.]

https://www.actionforme.org.uk/gcoe-2025-webinar/

Genetics Centre of Excellence: update on recent research
9 May 2025


We’re hosting a webinar to share the latest updates from research linked to our Genetics Centre of Excellence.

Don't miss this chance to hear directly from the scientists leading important discoveries and to participate in an engaging Q&A session with patient and public representatives.

Date: Thursday 6 June

Time: 2pm to 3pm

The session will be chaired by our Chief Executive, Sonya Chowdhury. It will include two presentations followed by a Q&A with scientists and Public and Patient Involvement representatives.





The 6th June is a Friday.
Can anyone clarify the date of the webinar? @Andy.

Will be interesting to hear an update on the Ryback blood project and PrecisionLife, but I suppose no DecodeME update at this webinar means we won't be getting results before 6th June...

Playing the waiting game is hard.

 

[hotblack]

This Friday we have the webinar with updates from Audrey Ryback and the PrecisionLife team, AfMe appear to be accepting questions in advance, I wondered if anyone had sent any in or maybe we could come up with some together?

 

[Sasha]

Just bumping this - the webinar is at 2pm tomorrow.

 

[Kitty]

Thanks for this, I'd forgotten about it.