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Understanding the Dialogical Experiences of Puerto Rican Women With Fibromyalgia: An Intersectional Analysis, 2021, De León-Menjivar

Discussion in ''Conditions related to ME/CFS' news and research' started by ola_cohn, Dec 8, 2021.

  1. ola_cohn

    ola_cohn Established Member (Voting Rights)

    : Fibromyalgia is a condition that is often misunderstood by the medical community. Misunderstandings are exacerbated when a patient is an ethnic minority, and recent literature suggests that ethnic minorities are shown to have a higher prevalence of fibromyalgia. Despite this information, many studies about fibromyalgia are conducted with Anglo-Americans while ethnic minorities are underrepresented.

    Methods: To address this research gap, this study uses qualitative interviews to discuss the dialogical experiences of Puerto Rican women with fibromyalgia through a combination of intersectional and rhetorical theory. These methodologies can reveal what having various identities can mean when communicating in institutional and cultural settings.

    Results: The data shows a significant level of gaslighting by providers, which led participants to more aggressively seek proper treatment. Cultural deference towards doctors was also noted as a practice that can backfire, especially when living with a condition that is often dismissed.

    Conclusion: The results indicate that when the body's truth is filtered through intersectional lenses, this truth can become distorted or lost.

    fibromyalgia, Latinos, intersectionality, women's health, chronic disease

    Trish and Peter Trewhitt like this.

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