Understanding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the Emerging Osteopathic Approach: A Narrative Review, 2019, Bested et al

Andy

Andy

Retired committee member
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating syndrome of unknown origin, characterized by profound postexertional malaise and fatigue, unrefreshing sleep, cognitive impairments, immune dysfunction, pain, autonomic dysfunction, and neuroendocrine symptoms. Although ME/CFS is well documented within the medical literature, it remains difficult to diagnosis and manage. Some of the current challenges include an absence of diagnostic markers, differing diagnostic criteria, and an overall lack of awareness within the medical community. As a result, patients are often frustrated by the difficulties in acquiring a diagnosis and from the overall lack of available treatments. In an effort to increase awareness, this review discusses disease pathophysiology, clinical presentation, and treatment options, while also highlighting the benefits of an osteopathic approach.
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Paywall, https://jaoa.org/article.aspx?articleid=2736993
Sci Hub, not available at time of posting.
 
I wonder what the 'osteopathic approach could possibly be. I guess we have to wait for access to the full paper. It's very odd abstract that doesn't even hint at what the authors are suggesting osteopaths can do for ME.

I can't think of anything, apart from the untested Perrin technique, the LP guy who claims LP includes osteopathy, but I can't see how it bears any relation to it, and things like cranial osteopathy that seems shrouded in mystery but claims to be able to work all sorts of wonders. (I've both had lesson in how to do it - unconvinced - and had it done on me - did nothing for me).

Edit: Since it's in an American publication, I suspect it has nothing to do with any of the things I suggested, as they all originate in the UK, I think.
 
Jonathan Edwards said:
Alison Bested works at Nova Southeastern University which has a combined osteopathic and medical degree course.
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Thank you.

I thought the name was familiar. She did the recent talk on pacing that was not well received by the ME community. I didn't listen, but I gather it was basic lifestyle advice and a song!
See this thread.

That's the university where Nancy Klimas works. I've just listened to her in a Solve panel discussion and she mentioned Alison Bested and seemed to think she's wonderful! Dr Klimas opined that most pwME don't pace properly and we need to be listening to what our bodies need more frequently through the day.
See this thread.
 
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