UK: People with ongoing Long Covid symptoms unable to donate blood (as of July 2023)

Discussion in 'Long Covid news' started by Andy, Aug 8, 2023.

  1. Andy

    Andy Committee Member

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    bobbler, MeSci, Lisa108 and 18 others like this.
  2. Denise

    Denise Senior Member (Voting Rights)

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    Of course they passed up the opportunity to have PEM/PESE (spelled out in words) as a symptom.... it could have been an opportunity for people to look it up and learn more about what they are experiencing. (Can't have that now, can we?)
     
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  3. Ariel

    Ariel Senior Member (Voting Rights)

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    I feel like in the UK they never acknowledged this as part of LC officially? (Unlike in the US, where they did.)
     
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  4. Maat

    Maat Senior Member (Voting Rights)

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    Are ME/CFS patients still banned? You used to be able to check on the illness list.
     
  5. Andy

    Andy Committee Member

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  6. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    So maybe the doctors should be banned since all these beliefs must have been caught off doctors?
    It would be particularly disturbing if transfusion recipients came to believe that their symptoms of recurrent haemorrhage were psychosomatic.
     
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  7. Maat

    Maat Senior Member (Voting Rights)

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    My point exactly. If you get a chance and are up to it, listen to the podcast in @Dolphin 's post today. Nancy Klimas is interviewed, but the podcasters chat about how they are with their Long Covid before that. All the tests and referrals they've had. Health inequality is an issue. I could only manage to listen part way through before I crashed, and I wasn't up to going through the other attachments to the post, so I may be pre-judging.

    Experiences with Klimas group
     
  8. Maat

    Maat Senior Member (Voting Rights)

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    Wouldn't it.
     
  9. Maat

    Maat Senior Member (Voting Rights)

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  10. bobbler

    bobbler Senior Member (Voting Rights)

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    are they claiming as for ME/CFS that it is all about them caring about the pwme and not the recipient issue?
     
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  11. shak8

    shak8 Senior Member (Voting Rights)

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    Higher levels of fragment RNA of the covid-19 virus in Long Covid patients in China.
    Still is unknown if these fragments are a causative factor in the development of LC symptoms.

    Also unknown whether these reservoirs contain replication-competent virus.

    Per Dr. Daniel Griffin TWIV approx 28 min

    https://www.youtube.com/watch?v=A_Fa1yIx4a0




    which references this study out of China in the Lancet. https://www.thelancet.com/journals/...24)00171-3/fulltext?dgcid=raven_jbs_aip_email

    So, it would seem prudent to me to avoid these unknowns in the blood supply.
     
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  12. rvallee

    rvallee Senior Member (Voting Rights)

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    They're claiming whatever explanation satisfies the person asking at the moment they're asking.
     
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