UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

OK there is a degree of complexity re selecting outcomes for trials which is really something only folks like you understand. However, as you have repeatedly highlighted, there are blindingly obvious mistakes e.g. failure to include objective indicators and then placing inappropriate confidence on subjective outcomes - without even acknowledging that unreliability! It's the failure to address the blindingly obvious which is frustrating!

 

It’s the failure to address the blindingly obvious, that allows them to collect data that “supports” their favoured approaches.

 

Precisely - which is why it's objectionable/incomprehensible that ME Association went down this route - if e.g. Charles highlighted concerns and was overruled --- well those who overruled should be aware of the fact that they got this one wrong -- 90K pounds down the drain -- or worse!

 

Such as walking out and refusing to listen or participate any further?

Such as...well, I don't need to quote the paragraph in question again.

 

has there still not been a response from MEA or an apology from Sarah Tyson??

 

Thank you, I see now.

Everytime I read an S4ME committee letter I remember how lucky we are to have such a resource!