From
https://www.crowdjustice.com/case/justice4me/
"We urgently need your support to make sure the specialist health and care services needed by everyone living with ME (Myalgic Encephalomyelitis) are provided without delay.
After three years of consultation, the Government’s Final Delivery Plan for ME/cfs, published in July 2025, made no commitment to the specialist health service needed,
“
NHS England also remains committed to working with a wide range of patients, patient groups and other stakeholders in the development of its commissioning of specialised services. Ultimately, prescribing a specialised service will be a ministerial decision and subject to funding availability.”
https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan
Stating that funding and services will be contingent on a political decision, yet again kicks people living with ME where it hurts:
- People are dying from ME without a specialist service
- Hospitals are clueless about how to safely manage ME patients without a specialist service
- Families are giving up their lives and livelihoods to provide the highly skilled nursing care required without a specialist service
We are not asking for anything not already offered to other people with chronic health conditions – and we never asked to be here, doing this, either. Now that we are here, please help fund our legal challenge. Donate what you can afford, so we can get expert legal advice on how to fight back.
You can see who our lawyers are at the top of this page.
Our case(s) identities are strictly private and confidential. Their details must not be disclosed anywhere by anybody but themselves. We will keep you regularly updated on progress and publish everything we can.
We know this is not going to be easy and that bringing this action is going to be costly. We also know that many people living with ME have been waiting for an opportunity to donate to a fund that will proactively represent them and
nobody else. We trust this is it.
We are raising £6K to get the case(s) opened with a target of £15K to keep all of it moving forward. There will be more fundraisers to follow.
We are completely independent of the ME organisations. We hope they will support us financially (for the benefit of their members) – donations can be anonymous, unless you choose to publicise them. Crowd Justice is giving us the lowest possible level of donation at £5, so if you can only afford to donate once, please join us. There are over a million people living with ME in England alone. Everyone deserves to have a chance to participate in paid employment, complete their studies, raise a family, and contribute socially without being punished by illness.
Together we can make a Plan for ME that finally delivers the safe, knowledgeable medical care needed as the first priority."
I wonder what exactly the desired "specialist health and care services" are meant to provide, and who is meant to staff them.