UK House of Lords/ House of Commons - relevant people and questions

Photo of Laura Kyrke-SmithLaura Kyrke-Smith Labour, Aylesbury​

To ask the Secretary of State for Health and Social Care, what steps he is taking to put in place a long term funding strategy for research into Myalgic Encephalomyelitis.

Photo of Zubir AhmedZubir Ahmed The Parliamentary Under-Secretary for Health and Social Care​

As set out in the Government’s final delivery plan for myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS) that was published in July 2025, the Department has taken action to strengthen research capacity and capability for ME/CFS to support the long-term future of the research field.

These actions include hosting a research showcase event, a new development award to evaluate repurposed pharmaceutical interventions, and announcing newly funded studies in health and care services, research infrastructure, and capacity-building.

We are determined to accelerate progress in the treatment and management of ME/CFS and will continue working with the community to identify and address barriers to research.

The Department funded National Institute for Health and Care Research welcomes funding applications for research into any aspect of human health and care, including ME/CFS.
 
Tao Fogger said:

Photo of Laura Kyrke-SmithLaura Kyrke-Smith Labour, Aylesbury​

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure consistent application of NICE guidelines across Integrated Care Boards for the diagnosis and access to specialist care for the treatment of ME/Chronic Fatigue Syndrome.

Photo of Ashley DaltonAshley Dalton The Parliamentary Under-Secretary for Health and Social Care​

National Institute for Health and Care Excellence (NICE) guidelines are evidence-based, informed by clinical expertise, and represent best practice. Healthcare professionals and integrated care board (ICB) commissioners are expected to take NICE guidelines fully into account when designing and delivering services, including for the diagnosis and treatment of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). NHS England ensures that ICBs follow NICE guidance through a combination of statutory oversight frameworks, annual performance assessments, and local clinical governance requirements.

We published the final ME/CFS delivery plan in July 2025, which is available at the following link:

https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan

The plan focuses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease. It also sets out a series of actions, which will help address the key challenges and drive forward improvements to outcomes and quality of life for people living with ME/CFS in England.
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That’s a big of a weird one of “why would someone ask that?

It sounds instead like for some reason the person wanted to talk on it so someone else was asked to ask it - but I’m not even sure in working out what that would achieve or why

These questions and answers are all do rubbish and seem with bite that someone’s stitched us up pre-organised but not from anyone who is in our side

That it’s a message of our place being delivered to us and I find it quite brutal in that way given to me I feel I see a difference between this and things band people being taken seriously

And this seems like a big staged charade of questions we even get to have answered for the next year and bullying pretending there is a MEDICAL service when the entire aim from all those involved is a ‘AVOID it ever bring allowed to be looked at medically’ service

There is a real ‘we’ve decided how we are dealing with you’ feel coming off all of this for me
 
Tao Fogger said:

Photo of Laura Kyrke-SmithLaura Kyrke-Smith Labour, Aylesbury​

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure consistent application of NICE guidelines across Integrated Care Boards for the diagnosis and access to specialist care for the treatment of ME/Chronic Fatigue Syndrome.

Photo of Ashley DaltonAshley Dalton The Parliamentary Under-Secretary for Health and Social Care​

National Institute for Health and Care Excellence (NICE) guidelines are evidence-based, informed by clinical expertise, and represent best practice. Healthcare professionals and integrated care board (ICB) commissioners are expected to take NICE guidelines fully into account when designing and delivering services, including for the diagnosis and treatment of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). NHS England ensures that ICBs follow NICE guidance through a combination of statutory oversight frameworks, annual performance assessments, and local clinical governance requirements.

We published the final ME/CFS delivery plan in July 2025, which is available at the following link:

https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan

The plan focuses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease. It also sets out a series of actions, which will help address the key challenges and drive forward improvements to outcomes and quality of life for people living with ME/CFS in England.
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This doesn’t seem to answer the question though?
 
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