Capture of the greens was a win for the biopsychosocial lot
UK House of Lords/ House of Commons - relevant people and questions
- Thread starter Sly Saint
- Start date
Tao Fogger
Senior Member (Voting Rights)
There was a debate in the Senedd (Welsh parliament) yesterday.
The full debate can be seen here : https://www.theyworkforyou.com/senedd/?id=2025-12-10.6.733123.h
(Translated)
Elin Jones Plaid Cymru
Item 5 is next, the Member debate. Today's debate is to be led by Adam Price, on ME. Adam Price to move the motion.
(Translated)
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- Record source
Motion NDM8884 Adam Price
Supported by Altaf Hussain, Cefin Campbell, Heledd Fychan, Jane Dodds, Joel James, John Griffiths, Julie Morgan, Llyr Gruffydd, Luke Fletcher, Mabon ap Gwynfor, Mark Isherwood, Mike Hedges, Rhun ap Iorwerth, Rhys ab Owen, Siân Gwenllian, Sioned Williams
To propose that the Senedd:
1. Notes that myalgic encephalomyelitis (ME) is a chronic and disabling illness at all levels of severity.
2. Notes that, of those suffering from ME, 25 per cent are categorised by NICE as 'severe: mainly bed bound or housebound', and 'very severe: fully bedbound', requiring full-time care and, in the severest cases, palliative care and tube feeding.
3. Regrets that it is often those with the greatest severity levels of ME who are provided with the least amount of appropriate care and treatment.
4. Calls on the Welsh Government to:
a) respond to the concerns raised in the Coroner in England’s Prevention of Future Deaths Report, and explain what practical steps they will take to ensure that no patient in Wales will ever be placed in such tragic circumstances as those described in the report;
b) ensure that the Adferiad-funded ME services are making provision appropriate to the needs of patients with severe and very severe ME;
c) bring together an expert group of health professionals and people with lived experience, at a national level, to develop all-Wales guidance and quality standards on ME, including for the most severely affected;
d) make the appointment of an all-Wales specialist consultant for post-infectious chronic conditions—including ME and long COVID—a priority;
e) improve the training on ME for professionals, firstly in the NHS, but also in social services and schools: in particular, raising awareness of the care needs of adults and children with severe and very severe ME; and
f) ensure that health boards truly co-produce their ME and long COVID Adferiad services, taking into account the lived experiences of those suffering at the severest levels and of those caring for them.
The full debate can be seen here : https://www.theyworkforyou.com/senedd/?id=2025-12-10.6.733123.h
Tao Fogger
Senior Member (Voting Rights)
Martin Wrigley Liberal Democrat, Newton Abbot
To ask the Secretary of State for Health and Social Care, what steps he is taking to support patients with overlapping conditions such as Myalgic Encephalomyelitis (ME), Long Covid, Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder, Postural Tachycardia Syndrome (PoTS), and Mast Cell Activation Syndrome (MCAS).- Tweet Share
- Hansard source(Citation: HC Deb, 11 December 2025, cW)
Ashley Dalton The Parliamentary Under-Secretary for Health and Social Care
The Department recognises the complex needs of people living with overlapping conditions such as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), long COVID, Ehlers-Danlos syndrome, hypermobility spectrum disorders, postural tachycardia syndrome, and mast cell activation syndrome. Our approach focuses on improving care coordination and access to appropriate services.For ME/CFS, we have published a cross-government final delivery plan, which sets out actions to boost research, improve professional education, and enhance support for daily living, including community-based services and better benefit assessments. While the plan is specific to ME/CFS, it acknowledges overlaps with other complex, multi-system disorders and commits to exploring synergies during implementation.
Additionally, the 10-Year Health Plan aims to transform services and outcomes for people living with complex conditions by prioritising integrated, personalised care. The plan focuses on earlier diagnosis and promotes multidisciplinary teams and community-based services to deliver coordinated support closer to home, reducing reliance on hospital care. Digital innovations, including remote monitoring and personalised care planning, will help manage long-term conditions more effectively. The Plan also commits to 95% of people with complex needs to have a personalised care plan by 2027. Personalised care plans will improve support for people with complex needs by ensuring that care is tailored to the individual and coordinated across services.
In addition, research funded by the National Institute for Health and Care Research into post-viral syndromes and autonomic disorders will help improve understanding autonomic dysfunction and overlapping conditions, accelerate innovation and deliver evidence-based care for patients with complex, multi-system health needs.
In the next 12 months then? Tick tock! It would take longer than that to identify all the people with complex needs, let alone write each them of a 'personalised care plan', even if they started now.
Robert 1973
Senior Member (Voting Rights)
Is there anyone on here who is in Sian Berry’s Brighton constituency who could contact her and maybe ask to meet her to explain the issues?
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve access to ME/CFS support in Ashfield.
Lee Anderson Reform UK, Ashfield
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- Hansard source(Citation: HC Deb, 2 December 2025, cW)
Residents of Ashfield with myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), are supported primarily through the Community Pain Management Service (CPMS), commissioned by the NHS Nottingham and Nottinghamshire Integrated Care Board for the mid Nottinghamshire area, which covers Mansfield and Ashfield and Newark and Sherwood.
The CPMS delivers a multi-disciplinary, community-based service for adults, those aged 16 years old and over, with chronic pain and/or ME/CFS. The service is designed to be accessible, equitable, and holistic, supporting both physical and psychological needs.
Ashfield residents can access the service at several local clinics, including Ashfield Health and Wellbeing Centre in Sutton-in-Ashfield, as well as other sites across mid Nottinghamshire, including Mansfield Community Hospital and Oak Tree Health Centre.
Referrals are accepted from general practitioners, musculoskeletal services, and hospital consultants. The service acts as a single point of access, ensuring streamlined and timely triage and assessment.
So, residents of Ashfield, (wherever that is), who have ME will be directed to the pain management team.
We know how useful the NICE guideline on chronic pain was: exercise, acupuncture and cutting down on pain meds.
While the responses in the UK parliament (and some of the questions too) indicate a lack of understanding of the issue, the motion posed in the Welsh Senedd looked spot on. I think those words, with the addition of a research funding ask, would be a good start when people are defining what they want from government.
Well done to the advocates behind that and the parliamentary representatives who supported it.
If anyone can comment on how the motion was received, I'd be interested to hear about it.