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UK: Guess who's working on a health data-slurping digital tool? DWP, 2019, Hill

Discussion in 'General disability topics and advocacy' started by Andy, Feb 26, 2019.

  1. Andy

    Andy Committee Member

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    https://www.theregister.co.uk/2019/02/19/dwp_health_data_tool/

    Also a blog on the subject
    https://universalcreditsuffer.com/2019/02/26/dwp-designing-tool-to-trawl-claimants-medical-records/
     
    Arnie Pye, Barry, Sly Saint and 12 others like this.
  2. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    One of the things that doesn't get mentioned publicly very often is that medical records can be stuffed with absolutely shocking mistakes, evasions, omissions and lies. Some people have been told that their records were lost in a fire or a flood or have been lost for unknown reasons. These problems add another layer of terror on to the idea of the DWP slurping up our health data, because decisions will be made on the basis of quite a lot of fiction, or data that just isn't there.
     
    WillowJ, rvallee, Sly Saint and 17 others like this.
  3. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    There is also the issue that people with more severe ME may be effectively excluded from health care because there are not suitable domiciliary services, or people with ME may withdraw from medical care because of negative experiences of or inappropriate advice from doctors.

    On the simple measure of contact with my GP, for me the number of times I see my GP is [inversely] proportial to the severity of my ME, because of the extreme difficulty in getting home visits.
     
    Last edited: Feb 27, 2019
    Simbindi, Arnie Pye, rvallee and 12 others like this.
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    As the DWPs decision makers are not medically qualified it will just mean either they will just ignore the medical evidence (as they often do anyway), or pick up on things like people being able to attend a hospital appointment as 'proof' that they are able to travel.

    But you can be sure it will have nothing to do with helping the 'client' get the correct support.
     
  5. Barry

    Barry Senior Member (Voting Rights)

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    Hang on! What about medical data confidentiality here? When we opted to allow our data to be centrally stored, the clear message was that it would be used so that any medical institution in the country will have access to your data, which can be potentially life saving if urgent treatment is required. But I don't recall it saying I was opting to allow outside organisations to access it for the purpose of snooping.
     
  6. Andy

    Andy Committee Member

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    When you apply for benefits they will ask your permission for them to access your medical data, solely for your benefit, obviously.
     
  7. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    I opted out! I didn't want my data put into NHS databases. And yet my data was available to a hospital A&E when they looked me up last year. I'd never set foot in the place in my life, and yet they had info about me.

    Don't ever trust the NHS with anything to do with data.
     
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  8. WillowJ

    WillowJ Senior Member (Voting Rights)

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    Barry likes this.
  9. WillowJ

    WillowJ Senior Member (Voting Rights)

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    Yes, well, not having snooping might be ok for regular people, although because Facebook, it's clearly not needed anymore.

    But people who get benefits, well, that's a different case and it's necessary to have a lot of snooping, to make sure there's not a lot of benefits cheats. Or to make sure every single one of the many, many benefits cheats get caught. I mean, there has to be a lot of benefits cheats to justify the huge organizational apparatus meant to catch the cheats. Much bigger effort than spent catching tax cheats. Am I right or am I right?

    (post laced with sarcasm, in case not evident)
     
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  10. Barry

    Barry Senior Member (Voting Rights)

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    I think one of the huge problems for pwME is that a great many doctors believe they are faking :(.
     
    Elestar, ladycatlover, Wonko and 3 others like this.
  11. WillowJ

    WillowJ Senior Member (Voting Rights)

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    Yes, for some reason this is thought to be some major concern that lots of people fake illness and disability. I don't get it. That's a really weird and inaccurate view.
     
  12. Wonko

    Wonko Senior Member (Voting Rights)

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    To be fair I think many doctors are faking their ability, and desire, to treat the ill and disabled.

    I suspect a lot would be much happier as accountants.
     
  13. JemPD

    JemPD Senior Member (Voting Rights)

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    a disturbing development
     
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