1. Guest, the 'News in Brief' for the week beginning 27th July 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice
  3. Guest, the DecodeME study has announced £3.2m of funding, click here to read about it.
    Dismiss Notice

UK Genome Wide Association Study (GWAS) project: indicate your support and/or willingness to take part and/or join the mailing list

Discussion in 'Advocacy Action Alerts' started by Andy, Dec 23, 2019.

  1. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    Last edited: Jan 7, 2020
  2. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    A very small example of what differences this project could make. Certainly beats someone sharing the "20 top tips to beat chronic fatigue" type of article with you.
     
  3. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

    Messages:
    774
    Likes Received:
    4,987
  4. obeat

    obeat Senior Member (Voting Rights)

    Messages:
    569
    Likes Received:
    3,938
    @And
    Do you have the letter on a file that we can share in N Ireland or has this already been done? We have several contacts in local media we can " coerce" !
     
  5. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    PM sent to you.
     
    ladycatlover and MEMarge like this.
  6. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    http://www.virology.ws/2020/01/13/trial-by-error-the-uks-proposed-genetics-study/
     
  7. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    1,151
    Likes Received:
    8,235
    Location:
    betwixt and between
    Great to have this on Virology Blog to reach a larger audience and get feedback from those who are skeptic or hesitant.

    Thank you @dave30th , @Simon M and all involved.

    Might also be helpful if someone had the capacities to respond to the comments.
     
    Last edited: Jan 15, 2020
  8. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    7,500 signups! Application goes in tomorrow.
     
  9. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    Sign-ups now over 7,800!
     
  10. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    832
    Likes Received:
    6,864
    Location:
    Germany
  11. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    Just to clarify, this is the last day to get your support recorded in the funding application. The ability to sign-up to express your interest in participating and/or to receive updates will still be there after today.
     
  12. ladycatlover

    ladycatlover Moderator Staff Member

    Messages:
    2,871
    Likes Received:
    14,904
    Location:
    Liverpool, UK
    Urm, I can't remember if I signed up or not. :oops: I think I might have done some sort of survey, but not sure. Humble apologies. Is there any way I can find out if I signed up already? Or should I just sign up again? Sorry, brainfogged today and can't think.
     
  13. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    Easiest to just try again to be honest, it should stop you from signing up again. https://mebiomed.org.uk/get-involved/
     
  14. JemPD

    JemPD Senior Member (Voting Rights)

    Messages:
    1,365
    Likes Received:
    11,138
  15. ladycatlover

    ladycatlover Moderator Staff Member

    Messages:
    2,871
    Likes Received:
    14,904
    Location:
    Liverpool, UK
    Put email addy and Post code in on the link. I think I must have done the survey already as it took me to a survey about current events with a big map of USA so I guess that might be about current political stuff going on there.
     
  16. Nellie

    Nellie Senior Member (Voting Rights)

    Messages:
    187
    Likes Received:
    1,533
    Location:
    UK
    I thought I'd signed up but thought I'd check - seems I hadn't... so there is one more.
     
  17. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
     
  18. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    Code:
    https://www.facebook.com/mebiomed/posts/145440950246116


     
    lunarainbows, JaneL, lycaena and 13 others like this.
  19. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    7,143
    Likes Received:
    72,855
    Pity these ME patients are so abusive and unco-operative towards researchers.
    ;)
     
    lunarainbows, FMMM1, Wonko and 15 others like this.
  20. Andy

    Andy Committee Member & Outreach

    Messages:
    10,032
    Likes Received:
    73,025
    Location:
    Hampshire, UK
    I think being able to prove that this isn't the case is just one of the reasons why this project is so valuable - if that number of expressions of support doesn't make a big impression on the funding bodies then I don't know what will.
     
    lunarainbows, FMMM1, Wonko and 13 others like this.

Share This Page