Kitty
Senior Member (Voting Rights)
As people may have heard in the news, a new study launched yesterday called Spectrum10k. I thought I'd post it here in case any of our autistic members had missed it.
Headline description
Spectrum 10K aims to investigate the genetic and environmental factors that contribute to autism and related physical and mental health conditions to better understand wellbeing in autistic people and their families.
More details
When you sign-up to take part in Spectrum 10K, you will be asked to complete an online questionnaire that typically takes approximately 30 minutes to complete, and provide a DNA saliva sample. You will be sent a DNA sample kit which you can use to post your saliva sample back to the Spectrum 10K team. Spectrum 10K researchers will study the information collected from the questionnaire and DNA saliva sample alongside your electronic health records (EHRs).
You will have the option to complete additional questionnaires. You can complete these all at once, or save your progress and complete these in your own time.
Web link
https://join.spectrum10k.org
There are sections of the questionnaires that can be a bit tricky, as it's based on the assumption that autism and the mental health challenges that sometimes accompany it are an individual's main issue. That's not the case for everyone, and although one section does specifically ask about neurological diagnoses (including ME), I found that a couple of answers about energy levels in the mental health sections gave me a score when actually the low energy has nothing to do with mental health. It didn't appear to skew the questionnaire significantly, though.
Headline description
Spectrum 10K aims to investigate the genetic and environmental factors that contribute to autism and related physical and mental health conditions to better understand wellbeing in autistic people and their families.
More details
When you sign-up to take part in Spectrum 10K, you will be asked to complete an online questionnaire that typically takes approximately 30 minutes to complete, and provide a DNA saliva sample. You will be sent a DNA sample kit which you can use to post your saliva sample back to the Spectrum 10K team. Spectrum 10K researchers will study the information collected from the questionnaire and DNA saliva sample alongside your electronic health records (EHRs).
You will have the option to complete additional questionnaires. You can complete these all at once, or save your progress and complete these in your own time.
Web link
https://join.spectrum10k.org
There are sections of the questionnaires that can be a bit tricky, as it's based on the assumption that autism and the mental health challenges that sometimes accompany it are an individual's main issue. That's not the case for everyone, and although one section does specifically ask about neurological diagnoses (including ME), I found that a couple of answers about energy levels in the mental health sections gave me a score when actually the low energy has nothing to do with mental health. It didn't appear to skew the questionnaire significantly, though.