UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

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Did any of the UK ME charities even take part in the WCA consu1tation? Shame, shame, shame on them if they didn't. If they don't start campaigning hard against this after tomorrow's announcement then I'11 consider them to have the b1ood of their members on their hands.
 
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I'm simultaneously horrified by what our state has become, and trying to be heartened by the fact the government is doing the opposition parties' job splendidly well and shows no sign of stopping.
 
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I don't have a subscription to The Times but saw this head1ine -

Rishi Sunak’s autumn statement to push benefit claimants into work
Hundreds of thousands of people without severe mobility and mental-health problems will be told ‘to make work pay’

So I wonder if they wi11 have rowed back from the very worst proposa1s and this wi11 effect the 1imited capacity for work group rather than the the 1imited capacity for work re1ated activity group where those with the severest mobi1ity and menta1 hea1th are put. Or The Times cou1d have misunderstood of course.

We'11 see tomorrow.
 
Do we know how hard they're going on this yet? i've been looking at coverage today and i can't figure out if "tightening" the criteria for substantial risk means the smaller changes regarding doing WRA from home or the bit where you can't get into the support group anymore. i agree that i doubt this stuff will come to pass but even the possibility that it might (whilst waving tax cuts around) shows exactly how disgusting these people are
 
I don't have a subscription to The Times but saw this head1ine -



So I wonder if they wi11 have rowed back from the very worst proposa1s and this wi11 effect the 1imited capacity for work group rather than the the 1imited capacity for work re1ated activity group where those with the severest mobi1ity and menta1 hea1th are put. Or The Times cou1d have misunderstood of course.

We'11 see tomorrow.
My feeling at the time was that it was testing the water but they wouldn't do the hardest measures, there was a certain diffidence to the way they talked about the most extreme stuff. that said, the celebratory atmosphere being cultivated this week feels like they could do anything
 
Labour Liz Kendall, Shadow Work and Pension Secretary says Work and Health are two sides of the same coin. No they are not! That is far too close to Work Makes You Healthy.



The Guardian, 21st November 2023

'A Labour government would treat health and work as “two sides of the same coin” to help tackle the growing tide of economic inactivity, the shadow work and pensions secretary has said, as Jeremy Hunt prepares to make welfare a key dividing line in this week’s autumn statement.'

https://www.theguardian.com/politics/2023/nov/20/labour-would-treat-health-and-work-as-two-sides-of-same-coin-says-liz-kendall#:~:text=A Labour government would treat,in this week's autumn statement.
 
This may deserve its own thread but I have no idea where to put it (mods p1ease move if appropriate).

https://www.gov.uk/government/publi...-healthcare-professionals-and-their-employers

1.6 It is generally accepted and there is evidence [footnote 2] [footnote 3] [footnote 4] [footnote 5] [footnote 6] [footnote 7] [footnote 8] that good quality work is good for physical health, mental health and wellbeing. Evidence also indicates that the longer someone is off work due to ill health, the less likely they are to return to employment[footnote 9]. Even if people are not fully fit, engaging with work can deliver health benefits.

1.7 Modern healthcare reflects that HCPs from a range of disciplines now play a central role in leading the delivery of healthcare and support for patients to enable them to manage their health and wellbeing. Increasingly this applies to enabling people to safely remain in or return to work wherever possible, and to manage their own health and wellbeing[footnote 10]. Whilst multi-professional working has seen some HCPs with the relevant skills and experience support work and health conversations, until July 2022 only doctors (registered medical practitioners) were legally permitted to certify fit notes.

1.8 The Department for Work and Pensions (DWP) amended legislation, with effect from 1 July 2022 to enable nurses, occupational therapists, pharmacists and physiotherapists to certify fit notes in addition to doctors (these five professions are referred to in this guidance as healthcare professionals - HCPs). The legislation is permissive, meaning that all these HCPs can legally certify a fit note, but they are not required to do so. Individuals should consider their scope of practice and ensure they have the relevant skills, knowledge and experience before undertaking health and work conversations and making decisions around certifying fit notes.

I just random1y 1inked to this, I had no idea that the DWP had changed the 1egis1ation on who can issue fit notes. It seems a step towards removing the GP from having input into who can receive out of work disabi1ity benefits. Apparently the DWP are p1anning a tria1 on making the DWP responsib1e issuing the 'fit notes' and treating patients with their own therapists.

https://www.whatdotheyknow.com/request/sick_notes_to_be_approved_by_ben
 
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Did any of the UK ME charities even take part in the WCA consu1tation? Shame, shame, shame on them if they didn't. If they don't start campaigning hard against this after tomorrow's announcement then I'11 consider them to have the b1ood of their members on their hands.
MEA did, there was a link to their submission on their fb page. But i hadnt the energy or emotional robustness to read it.
 
MEA did, there was a link to their submission on their fb page. But i hadnt the energy or emotional robustness to read it.
Okay. I found it -

https://meassociation.org.uk/2023/1...ent-proposed-abolition-and-open-consultation/

ME Association: The Work Capability Assessment: proposed abolition and open consultation
October 17, 2023


The government has proposed the abolition of the Work Capability Assessment, and the Department of Work and Pensions is moving ahead with changes to the current assessment descriptors. In this blog, we provide background to these changes and to the stakeholder consultation which has a deadline 30 October. We have set out the charity’s position below, and we will provide guidance and recommendations on the consultation itself in a separate blog.

ME Association Statement
While we welcome any increase in opportunities for disabled people to return to and remain in the workforce, we are very concerned that the government is basing much of these changes on the belief that there are more remote or home-working jobs available and that they are suitable for people with disabilities including ME/CFS and Long Covid.

There has been no related research, and it seems very unfair to introduce the abolition of the Work Capability Assessment (WCA) or make changes to the existing activities and descriptors ahead of the abolition without first establishing that these work opportunities are available or that the changes being suggested will not disadvantage people in desperate need of continued welfare support.

It is not clear how many remote working jobs exist or the proportion of them that are suited to people with disabilities. Working requires routine attendance and productivity, which can be very real challenges for people with fluctuating conditions, for example, who don’t know if their cognitive or physical health will remain stable. The decision when and how to return to work should be with the person who is disabled. It shouldn’t be something that is taken away from them.

Recent data from the Office for National Statistics (the only research available) reveals that far more people who are able to work from home are working hybrid positions – where they are at home for some of the time and office-based for the remainder (often the majority). A hybrid position may not be suitable for someone with a disability, whose mobility, for example, is a concern and who is unable to travel.

While some people may benefit from opportunities to work from home, this is not the case for all. The ONS found that 75% of people on the lowest income were not able to work from home, and that the rate of disabled people working from home is not significantly higher than the rate of non-disabled people working from home.

This suggests that opportunities to work from home are not open to everyone, in particular those on the lowest incomes who are more likely to be claiming Universal Credit. The risk here is that people are assessed as being fit for work, or as having limited capability for work, but are not put in the support group, under the assumption that they are able to find a job which allows them to work from home.

It should also be noted that, although the intention of the White Paper appears to be to have fewer people in the support group, changing the goal posts of the WCA may also lead to more people being found to be fit for work, and facing higher levels of work conditionality than they would have previously.

Furthermore, we are concerned about putting pressure on a community which is already very socially isolated to spend more time at home. Although ONS data suggests that home working can have a positive effect on wellbeing, this data is a snapshot of the whole population. For people who have fewer opportunities to socialise, pressure to work from home may have a negative impact on wellbeing.

It can mean, for example, that disabled people put all their effort into working and have little left for other equally important activities, or that they need to spend money to employ carers to do more so that they can work. The government should gather evidence about the impact of home working on disabled people in particular, and how they can be supported to make use of new opportunities in a way that promotes their health and wellbeing.

We know that a lot of people with ME/CFS and Long Covid struggle to access disability benefits, and it is not uncommon to have a Personal Independence Payment (PIP) claim reduced or withdrawn following review. The most recent statistics on PIP show that 21% of PIP awards were stopped following a review. We also know that, when people challenge DWP benefit decisions, they are often successful. According to recent tribunal statistics, 63% of claims brought to the social security and child support tribunal were overturned in the claimant’s favour.

If the WCA were to be abolished, this would mean that, if an individual lost their PIP, they could also lose the new UC health element. We are concerned that this proposal may lead to people losing a large proportion of their income overnight after being wrongly assessed as not having entitlement to PIP.

Although the White Paper does state that the government remains committed to a contribution-based health and disability benefit, which is currently the New Style Employment Support Allowance (NS-ESA), it does not make it clear what would happen to NS-ESA if the WCA were to be abolished. If NS-ESA entitlement is linked to PIP entitlement, this could mean that if an individual lost their PIP, they could also lose their NS-ESA, which would be an even larger proportion of a person's income.

In conclusion, we do not believe that the increase in home-working – triggered by the pandemic – has been proven in terms of an increase in job opportunities for disabled people and we are concerned that the government’s decision to abolish the WCA in 2026 is based on an assumption rather than hard facts.

It seems that despite any good intention the main driver behind these reforms is to save money, when all the evidence indicates that there are more long-term sick or disabled people in need of support than ever before. While we can see the benefit of having one medical assessment, we are worried that changes to current WCA descriptors will mean more people on low incomes will lose financial support and will be unable to find suitable work despite the possibility of working from home.

A very poor response. It doesn't even cover how ME makes most sufferers too i11 to work even from home! Bizarre. Again, the MEA is fai1ing moderate, severe and very severe patients. It shows they rea11y haven't researched the rea1ity of so many PWME, especia11y those too i11 to work (in any capacity).
 
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A very poor response. It doesn't even cover how ME makes most sufferers too i11 to work even from home! Bizarre. Again, the ME is fai1ing moderate, severe and very severe patients. It shows they rea11y haven't researched the rea1ity of so many PWME, especia11y those too i11 to work (in any capacity).
Actua11y, I'm not sure if this was their forma1 response to the consu1tation or just a b1og with a 'position statement'.
 
I agree it's a poor response, and a very odd one. Apart from mentioning fluctuating conditions, it makes no explanation of why most pwME are not able to work even if it's home based and flexible. I think at the very least they should have made it clear that pwME are not just 'disabled' we are sick, with major energy limitations and PEM meaning attempting to maintain work is liable to make us sicker, and activity limiting symptoms like OI and cognitive dysfunction. The so called fluctuations are between sick and sicker, energy limited and energy lost. It's not about being well some of the time.
 
1.8 The Department for Work and Pensions (DWP) amended legislation, with effect from 1 July 2022 to enable nurses, occupational therapists, pharmacists and physiotherapists to certify fit notes in addition to doctors (these five professions are referred to in this guidance as healthcare professionals - HCPs). The legislation is permissive, meaning that all these HCPs can legally certify a fit note, but they are not required to do so. Individuals should consider their scope of practice and ensure they have the relevant skills, knowledge and experience before undertaking health and work conversations and making decisions around certifying fit notes.

I wonder how this wi11 effect ME/CFS services?
 
The so called fluctuations are between sick and sicker, energy limited and energy lost. It's not about being well some of the time.

This.

I was mild-moderate until the DWP repeatedly told me I was fit for work - having had to leave my career due to severe health issues, even before I got diagnosed with ME - and I got pushed into part time work. That lasted 13 months before I was physically and mentally destroyed and became moderate-severe and could no longer walk out of my own car park, where I could previously walk almost a mile a couple of times a week.

I was just starting to get to the point where I could leave the flat for a whole hour, on a really good day, after five years of recovery, when we had a global pandemic. Thanks to several dances with covid, I can no longer get downstairs to check my post more than a couple of times a week, can no longer shower every day and spend most afternoons pinned to my bed feeling unbearably crap.

This rhetoric is really messing with my already very scrambled head, as I fear being put in that position again. Or worse.

As I said on this thread before, along with my co-author, we submitted a detailed response to both the Green Paper, the WCA consultation, have written multiple emails to our MP and have exchanged four emails with Tom Pursglove via our MP. (Now, if they wanted to pay me by the email...)

Wilful deafness is the best I can say, unfortunately. This is performative cruelty at it's worst.
 
Okay. I found it -

https://meassociation.org.uk/2023/1...ent-proposed-abolition-and-open-consultation/



A very poor response. It doesn't even cover how ME makes most sufferers too i11 to work even from home! Bizarre. Again, the ME is fai1ing moderate, severe and very severe patients. It shows they rea11y haven't researched the rea1ity of so many PWME, especia11y those too i11 to work (in any capacity).
Well sorry but its beyond poor, its abysmal. It sounds like the person writing it has no idea of the difficulties or the benefits system. ITs shocking.

The issue is that without the WCA we'll all be subject to untrained work coaches to decide what work or work related activity we have to do, and they are to be incentivised to pressure us into doing what we cannot. With the result that they will sanction us and remove our income. There will be no right of appeal & we will be subject to their whim. I dont know if i will be able to go with life if I have to turn up to a job centre to be humiliated & beg them to believe i am desperately ill, not tired, and do it every fortnight.
I dont think i will. sorry thats just what will happen, that will be the end for me unless some miracle occurs.

I just dont know what to say about the MEA's response, i feel really let down by it. When they even suggest that the decision whether to work should be left to claimants... i mean what the actual?
That is precisely what the DWP & the country DONT want, thats the whole point of the reforms - that they think we are all just deciding whether to work or not!

I'm afraid i agree with you @Simbindi it seems like they are only really interested in advocating for those who are at the mildest end. Thats whats happened here anyway.

I have massive respect for Dr Shepherd, I really think the landscape for us would be much worse without his hard work over the yrs, but that response to the DWP consultation is, as you say. Bizzare.

Only that i glad i no longer a member. I think maybe they got hypnotised by the DHSC consultation and treated this (which unfortunately overlapped time wise) as a secondary concern. I do get that they only have so much manpower etc, but they could even have come here to ask for help with it, just reading this thread would have informed them better than they clearly were. Or they could have gone to to benefits and work, which had offered special free support for charities who wanted it, (& i know MEA knew about this because a friend told me she'd contacted them on fb to tell them it was available).

Very disappointing, upsetting
 
As I said on this thread before, along with my co-author, we submitted a detailed response to both the Green Paper, the WCA consultation, have written multiple emails to our MP and have exchanged four emails with Tom Pursglove via our MP. (Now, if they wanted to pay me by the email...)
Thank you. Just a massive thank you.

And to you too @Simbindi
 
I know we'11 find out the detai1s tomorrow, but current1y the papers are making this statement -

Hundreds of thousands of people with mobility or mental health problems will be told to look for work that they can do from home or face having their benefits cut by £4,680 a year, as part of a squeeze on benefits.

https://www.theguardian.com/uk-news...looks-to-cut-uk-taxes-and-turbo-charge-growth

This is the extra payment of UC if you have limited capability for work and work-related activity. But it wi11 a1so equate to the amount of the 'hea1th e1ement' if they abo1ish the WCA and use PIP as the e1igibi1ity criteria for extra support in UC (if introduced on today's figures not accounting for inf1ation and up-ratings).

So it's very confused messaging for the genera1 pub1ic, as it makes it seem 1ike this extra financia1 support wi11 be conditiona1 on 1ooking for 'suitab1e' work opportunities from home for those with mobi1ity and menta1 hea1th difficu1ties. However, that's not what the WCA consu1tation actua11y proposed, it proposed changes to the scoring of the re1evant e1ements of the WCA and thus e1igibi1ity for the limited capability for work and work-related activity group itse1f.

Most of the pub1ic wi11 not understand these nuances of course.
 
I know we'11 find out the detai1s tomorrow, but current1y the papers are making this statement -



https://www.theguardian.com/uk-news...looks-to-cut-uk-taxes-and-turbo-charge-growth

This is the extra payment of UC if you have limited capability for work and work-related activity. But it wi11 a1so equate to the amount of the 'hea1th e1ement' if they abo1ish the WCA and use PIP as the e1igibi1ity criteria for extra support in UC (if introduced on today's figures not accounting for inf1ation and up-ratings).

So it's very confused messaging for the genera1 pub1ic, as it makes it seem 1ike this extra financia1 support wi11 be conditiona1 on 1ooking for 'suitab1e' work opportunities from home for those with mobi1ity and menta1 hea1th difficu1ties. However, that's not what the WCA consu1tation actua11y proposed, it proposed changes to the scoring of the re1evant e1ements of the WCA and thus e1igibi1ity for the limited capability for work and work-related activity group itse1f.

Most of the pub1ic wi11 not understand these nuances of course.

Agree totally, i've written all the messaging off as playing to the crowd. otoh if this is all irrelevant, it does at least mean what they'll actually do is still up in the air for a couple of hours
 
won't be sat here for long but i'll say anything relevant while i can pay attention.
1. some good news (no really): benefits to be uprated at 6.7%, which is as it should be. there was speculation that some trickery would be used to hold the uprate figure down, no doubt to pay for the much advertised tax cuts
 
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