Closed UK: DecodeME updates, was recruitment thread.

It's M.E. Linda said:
Many thanks for your response @Andy I asked both members to use the “contact us” details to check their applications with the team.
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Do you know if they have completed our questionnaire? If they have, and they received the notification that they have not been selected for the DNA stage then this will not change. We do not reveal the reason why individuals aren't selected, although we will confirm the selection criteria when we publish the results, but I can confirm that age isn't part of it (other than needing to be older than 16yo).
 
Update on access to the DecodeME questionnaire next week, posted on all our social channels.

"Our supplier has told us that essential maintenance work will occur on 14 November between 7.30pm and 10.30pm. This is outside of our control. You will not be able to access the DecodeME questionnaire during this time. Many apologies for any inconvenience."
 
I made a rare foray onto Facebook the other days, and saw five ads for DecodeME (three from the project team, two that others had shared). The last push seems to be working well.

I also shared them, of course, but as I almost never post anything except occasional replies to other people's posts, I'm not sure if many people see them.
 
I had to redo my sample as it had not been extracted properly apparently. But i sent it off a while ago and it was received. Should I be worried that I never got a further correspondence saying it was okay and has been extracted successfully? Sorry if this is the wrong thread. Thanks in advance if anyone knows. A xx
 
Ariel said:
I had to redo my sample as it had not been extracted properly apparently. But i sent it off a while ago and it was received. Should I be worried that I never got a further correspondence saying it was okay and has been extracted successfully? Sorry if this is the wrong thread. Thanks in advance if anyone knows. A xx
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Thanks for taking part, and for giving two samples. Obviously the important part is that you received confirmation that your second sample was received at the UK Biosample Centre. The extraction process there isn't running as quickly as we would like but it is running, so I am confident that you will receive confirmation of extraction in time. However, if you would like to, you can double check with our team by sending an email to info@decodeme.org.uk and ask them to double check the status of your sample.
 
Recruitment closes this week, Weds 15th at 5pm.
  • If you haven't taken part yet, you have until then to complete the questionnaire at www.decodeme.org.uk/portal/.
  • If you are a participant and were asked for a DNA sample, but have lost your sample kit then you have until then to request a new kit to be sent to you. Email the team at info@decodeme.org.uk.
  • If you were asked for a DNA sample and are yet to send it back, you have until 31st Jan to do so, but we recommend before then if possible to take into account the festive season.
 
Andy said:
Recruitment closes this week, Weds 15th at 5pm.
  • If you haven't taken part yet, you have until then to complete the questionnaire at www.decodeme.org.uk/portal/.
  • If you are a participant and were asked for a DNA sample, but have lost your sample kit then you have until then to request a new kit to be sent to you. Email the team at info@decodeme.org.uk.
  • If you were asked for a DNA sample and are yet to send it back, you have until 31st Jan to do so, but we recommend before then if possible to take into account the festive season.
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Reminder, today is the last opportunity to take part if you haven't already.
 
Some people on social media are reporting that they are still seeing a message that our website is down for maintenance.

We can confirm that this is not the case, what you are being shown is the old version of the website (for technical reasons your browser is trying to be helpful by not loading the current site).

Forcing your browser to reload the website should fix this - on a computer hold down shift and press R (cmd+R on a Mac), on a mobile use your browser reload function (often accessed through the three dots option somewhere on your browser) when you are viewing the page. You can also clear your browsers cache or use another browser or device.
 
Wow, a memorable occasion. Thank you to all the amazing team, and to everyone who's taken part.

Am itching to find out what the total number of participent ended up being. I imagine we wont know that until after all the spit kits are returned at end of Jan.

I do worry we wont have enough, heres hoping :)
 
@Andy, you and the team have done a fantastic job of providing a well run huge project and making it as accessible and straightforward as possible for people of all severities to participate in. Whatever the final outcome, you can all be very proud of your achievement. Thank you.
:trophy@:trophy@:trophy@
 
Trish said:
@Andy, you and the team have done a fantastic job of providing a well run huge project and making it as accessible and straightforward as possible for people of all severities to participate in. Whatever the final outcome, you can all be very proud of your achievement. Thank you.
:trophy@:trophy@:trophy@
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Yes its incrdible how easy and well thought out it was to participate, & how patient voices were really listened to in the design & all the way through. A fantastic job, especially given the size/numbers.

:emoji_clap::emoji_clap::emoji_clap::emoji_clap::emoji_trophy::emoji_dart:
 
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