The UK ME/CFS Biobank Christmas 2017 Appeal

Read more and donate at https://www.justgiving.com/fundraising/ukmecfsbiobank

 

Worth quoting this bit too, I think:

Off to a good start with a very generous £500 (+ £125 Gift Aid!) donation towards the main £25,000 target. But as they say, even a quid could pay for a set of blood samples to be stored for a year.

 

I've emailed Father Christmas.

 

Video about the biobank from a while back:

 

http://cureme.lshtm.ac.uk/christmas-2017-fundraising-appeal/
"
Any funds donated will be split between these aims, with collaborating research projects to be chosen by the UKMEB Guardian Board.

— £10,000 would enable a further blood sample and data release,
— £25,000 would enable the release of samples for two or three studies to be conducted,
— £40,000 would sustain the UKMEB for 6 months in its entirety."

 

I've not donated to this before, but it does sound a sensible use of resources, and Jonathan Edwards was recommending donations. It's the sort of worthy project likely to lead to long-term benefits that I wish more people would donate to... okay, I've talked myself into it.

edit- can't do it now. When this thread next gets bumped I will.

 

Code:

https://www.facebook.com/mecfsbiobank/posts/1599003450147092

 

Bump

 

You are brilliant! - I had totally forgotten about this.

 

Dr Elisa Oltra profile.

Code:

https://www.facebook.com/mecfsbiobank/posts/1595042630543174

 

Richmond and Kingston ME Group donation.

Code:

https://www.facebook.com/mecfsbiobank/posts/1599011780146259

Dr Camila Malto Romano profile.

Code:

https://www.facebook.com/mecfsbiobank/posts/1604299582950812

 

Current total £8,195.25 out of a £25,000 target.

Latest Facebook post from them

"Our research nurse, Caroline Kingdon, celebrates her birthday today! Here is a clip from our meeting on Wednesday, featuring some dodgy singing from the CureME team...

We're still fundraising to keep Caroline visiting pwME into the future: https://www.justgiving.com/fundraising/ukmecfsbiobank"

Code:

https://www.facebook.com/mecfsbiobank/videos/1604410739606363/

 

Latest update on Facebook from them

Code:

https://www.facebook.com/mecfsbiobank/posts/1609311509116286

 

Researcher update with some (additional?) info on their supplementary work funded by the NIH.

Code:

https://www.facebook.com/mecfsbiobank/posts/1610366352344135

 

Tell everyone you know to contribute to this for a Christmas good deed! It would make a huge difference to morale if £25,000 could be raised towards the running costs to keep things going.

 

I had a look on PR and there didn't seem to be a thread on the biobank christmas fundraiser appeal so I made one.

 

Sometimes these things do just disappear without a trace on social media. It could be only a few people even saw it. Thanks for posting, but best not to take to lack of response personally.

 

Well, you're not invisible here. I'm sorry you didn't get any response, I very rarely get an obvious response whenever I share anything on Facebook, but I still think the effort will be worthwhile in the long run, as it helps to normalize ME. And the Biobank isn't an easy sell for donations, it isn't as compelling as donating to research.