1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 18th March 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

The UK ME/CFS Biobank Christmas 2017 Appeal

Discussion in 'Fundraising' started by Andy, Nov 14, 2017.

  1. Andy

    Andy Committee Member

    Messages:
    21,803
    Location:
    Hampshire, UK
    Read more and donate at https://www.justgiving.com/fundraising/ukmecfsbiobank
     
  2. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,768
    Location:
    UK
    Worth quoting this bit too, I think:

    Off to a good start with a very generous £500 (+ £125 Gift Aid!) donation towards the main £25,000 target. But as they say, even a quid could pay for a set of blood samples to be stored for a year. :)
     
    MeSci, Skycloud, Esther12 and 12 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    I've emailed Father Christmas.:emoji_fingers_crossed:
     
    Skycloud, Esther12, Jan and 6 others like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,768
    Location:
    UK
    AliceLily, Esther12, Jan and 7 others like this.
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    http://cureme.lshtm.ac.uk/christmas-2017-fundraising-appeal/
    "
    Any funds donated will be split between these aims, with collaborating research projects to be chosen by the UKMEB Guardian Board.

    — £10,000 would enable a further blood sample and data release,
    — £25,000 would enable the release of samples for two or three studies to be conducted,
    — £40,000 would sustain the UKMEB for 6 months in its entirety."

     
  6. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    I've not donated to this before, but it does sound a sensible use of resources, and Jonathan Edwards was recommending donations. It's the sort of worthy project likely to lead to long-term benefits that I wish more people would donate to... okay, I've talked myself into it.

    edit- can't do it now. When this thread next gets bumped I will.
     
  7. Andy

    Andy Committee Member

    Messages:
    21,803
    Location:
    Hampshire, UK
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1599003450147092
     
  8. BurnA

    BurnA Senior Member (Voting Rights)

    Messages:
    410
    Bump :p
     
  9. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    You are brilliant! - I had totally forgotten about this.
     
  10. Andy

    Andy Committee Member

    Messages:
    21,803
    Location:
    Hampshire, UK
    Dr Elisa Oltra profile.
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1595042630543174
     
    AliceLily, Aroa, Skycloud and 3 others like this.
  11. Andy

    Andy Committee Member

    Messages:
    21,803
    Location:
    Hampshire, UK
    Richmond and Kingston ME Group donation.
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1599011780146259


    Dr Camila Malto Romano profile.
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1604299582950812
     
  12. Andy

    Andy Committee Member

    Messages:
    21,803
    Location:
    Hampshire, UK
    Current total £8,195.25 out of a £25,000 target.

    Latest Facebook post from them

    "Our research nurse, Caroline Kingdon, celebrates her birthday today! Here is a clip from our meeting on Wednesday, featuring some dodgy singing from the CureME team...

    We're still fundraising to keep Caroline visiting pwME into the future: https://www.justgiving.com/fundraising/ukmecfsbiobank"

    Code:
    https://www.facebook.com/mecfsbiobank/videos/1604410739606363/
     
    AliceLily, Binkie4, Esther12 and 4 others like this.
  13. Andy

    Andy Committee Member

    Messages:
    21,803
    Location:
    Hampshire, UK
    Latest update on Facebook from them
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1609311509116286
     
    Binkie4, Joh, Esther12 and 2 others like this.
  14. Andy

    Andy Committee Member

    Messages:
    21,803
    Location:
    Hampshire, UK
    Researcher update with some (additional?) info on their supplementary work funded by the NIH.
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1610366352344135
     
    Esther12, Valentijn, Joh and 2 others like this.
  15. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    13,267
    Location:
    London, UK
    Tell everyone you know to contribute to this for a Christmas good deed! It would make a huge difference to morale if £25,000 could be raised towards the running costs to keep things going.
    IMG_0209.jpg
     
  16. Daisybell

    Daisybell Senior Member (Voting Rights)

    Messages:
    2,628
    Location:
    New Zealand
    I’ve just shared the link on Facebook, which I never normally would do. Probably around half of my Facebook friends don’t know I’m ill- but I’m hoping one or two might donate. I’m going to donate for Xmas.
    I’m not ashamed of being ill and I am sick of pretending I’m well just to fit in with what society expects.
    Perhaps I’m turning into a grumpy old woman!
     
  17. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    2,187
    Location:
    UK
    I had a look on PR and there didn't seem to be a thread on the biobank christmas fundraiser appeal so I made one.
     
    Cheshire, Trish, Andy and 1 other person like this.
  18. Daisybell

    Daisybell Senior Member (Voting Rights)

    Messages:
    2,628
    Location:
    New Zealand
    So no likes for my Facebook post, and no comments, and no donations.
    I am invisible....
     
    Trish, Binkie4 and Esther12 like this.
  19. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Sometimes these things do just disappear without a trace on social media. It could be only a few people even saw it. Thanks for posting, but best not to take to lack of response personally.
     
    Trish, Daisybell and Andy like this.
  20. Andy

    Andy Committee Member

    Messages:
    21,803
    Location:
    Hampshire, UK
    Well, you're not invisible here. I'm sorry you didn't get any response, I very rarely get an obvious response whenever I share anything on Facebook, but I still think the effort will be worthwhile in the long run, as it helps to normalize ME. And the Biobank isn't an easy sell for donations, it isn't as compelling as donating to research.
     
    Trish, Esther12 and Daisybell like this.

Share This Page