The Sick Times: My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her.

[ahimsa]

My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her.

https://thesicktimes.org/2024/12/10...-long-covid-i-wrote-an-apology-letter-to-her/

EDIT: This instagram post has the same essay (posted as multiple images) and a bit more background on the author.

In the first essay in our Color of Long COVID series, supported by the Disability Visibility Project (@disability_visibility), Jacqueline E. Luciano describes how her experience with Long COVID led her to better understand her mother’s experience with ME decades earlier.

Jacqueline is a first-generation Filipino-American who was working as a Regulatory Nurse Consultant during the start of the pandemic until she was disabled by Long COVID and associated conditions in 2022. She’s a BIPOC Fellow at Long COVID Justice, a Narrative Architect for Listening for the Long Haul: A Living History of Long COVID and a Long COVID Advisor for National Organization for Nurses with Disabilities.