Discussion in 'General ME/CFS News' started by Gary Burgess, Jan 28, 2019.
Thanks again Gary.
@Sly Saint , if you've got the energy for it, I saw a request for a transcript of this episode (@Grigor ).
Thanks - marking this to listen to later. I'm just not finding time to keep up with all I want right now! Thanks to everyone.
This second series is really good, @Gary Burgess, thank you.
I've done a transcript of Episode 8 with Dr Nina Muirhead;
On a personal level it struck many chords with me not least the trying to go back to work bit...also occurred to me that 18 years ago (when she started medical school) was when I fell ill.
I'll try and do the latest one with Carol Monaghan when I can.
Carol does not pull punches. She gives a clear and considered account of the state of play.
Dr Sharpe appears to her like a caged animal.
Done the transcript for Series 2 Episode 9 with Carol Monaghan (apologies if there are errors, I've not gone through it thoroughly).
Any plans to do an interview with David Tuller?
Sometime in the next month would be good re the crowdfund.
Australian medical researcher Dr Mark Guthridge is my guest on today’s tenth episode of The ME Show podcast (the last in this series).
Search ‘The ME Show’ in iTunes, Spotify, Buzzsprout and other podcast players or visit www.meassociation.org.uk/themeshow
Great talk to Mark Guthridge, both a patient and scientist.
Very interesting this work looking at cancer cells, normal cells and ME cells, - also hearing of the metabolic inflexibilitys that can be measured and possibly targeted to reactivate metabolism.
Also nice that he who have attended a whole lot of cancer symposiums with only doctors/scientists, finds these ME-symposiums where patients interact so valuable.
Great season, Gary. Thanks.
@Gary BurgessThanks for all your hard work on these shows.
I'm a bit behind, just caught up with the Carol Monaghan episode, which is great, I'm so glad we have her working for us.
I wondered if, in the show notes alongside the links to the Sharpe/Liddle horror, you thought it might be helpful to include a link to the video being discussed here https://www.s4me.info/threads/response-to-michael-sharpe’s-claims-of-harassment.8850/
Just to give the 'other side' so to speak?
It includes clips from the parliamentary debate so i thought it might be pertinent?
Just a thought
How is it the last in the series already?! It has been an excellent series Gary - really great guests and info. Thank you!!
Thanks, all, for your feedback, guest suggestions, transcripts and kind words about series two. We broke through the 30,000 downloads barrier this week - which is beyond all my expectations. Have a restful Sunday, if you can.
Thank you @Gary Burgess for another fantastic series. And seriously well done for breaking the 30,000 downloads barrier! Amazing! It’s good to know that your podcasts are reaching such a wide audience. You mentioned at the end of your last podcast that the ME show will be back which is great news. I look forward to the next series. In the meantime, take good care of yourself - I do hope things improve for you.
Can stream via
Great heartening episode, Gary. I find it appropriate to quote Klopp (Liverpool manager) last night:
- the guys are f...... mental giants.
That could be said of the ones telling their story on the podcast and everyone facing and living with ME.
It’s not a big issue, but wish there maybe was one or two men besides our friend Grigor talking. Given the ratio of the disease, it is natural that it’s almost only women talking. And a couple of mothers do talk on behalf of their sons, so that is good. So to be fair, this actually may be close to reflecting the women/men ratio. Nice work.
More general: when making things on ME, the picture often turns out quite one-sided. Aware that this often is out of control of the ones making it, whether it is a written piece, podcast or whatever. They may have thought about this and tried, but for different reasons not succeeded in getting men “out in the open”. Men are probably hiding to a greater extent. So you have the factors of ratio and hiding often making the picture a little skewed.
We do know that there obviously are good representatives of men out there. So for the future, I hope that the ones making different things are aware of this and try to balance this in the best possible way. Just think we have some work to do on the myths of “only women disease”, “good-girl syndrome”, or whatever goes around. ME could and does impact anybody, and that is an important message. So guys, we have to step it up! But this is delicate. Can only speak for myself, but think many of us are past the state of being ashamed of ME and trying to silencing everything about it.
Not actually about Gary's podcast but just Gary.
Some sad news from Gary
So sorry to hear that
I'm very sorry to hear your news, @Gary Burgess. I hope the treatment goes as well as possible, and that you are soon back to posting your ME news.
Wishing you all the strength you need.
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