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"The denouement". My answer to prof. Knoop.

Discussion in 'General ME/CFS News' started by Grigor, Mar 29, 2018.

  1. Grigor

    Grigor Established Member (Voting Rights)

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    Inara, Yessica, Ravn and 36 others like this.
  2. Alvin

    Alvin Senior Member (Voting Rights)

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    Very nice. Any chance it can be published in the same newspaper?
     
  3. Trish

    Trish Moderator Staff Member

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    Very good article, @Grigor. I hope you can get it published more widely. Have you sent it to the newspaper that published the Knoop article?
     
  4. Grigor

    Grigor Established Member (Voting Rights)

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    I send it to them but my blog is way too long I think. Let's see.
     
  5. Grigor

    Grigor Established Member (Voting Rights)

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    Didn't know where to put it. Please do if it's any better. Thank you!!!
     
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  6. strategist

    strategist Senior Member (Voting Rights)

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    The CBT proponents seem rather nervous these days. They can see the end approaching.

    As Valentijn says in her comment, they have nobody but themselves to blame if the end of CBT for ME/CFS is rather unpleasant and embarassing.
     
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  8. Ravn

    Ravn Senior Member (Voting Rights)

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    Very important, that bit. Seems to have been swamped a bit lately by the – highly justified – critiques focusing on subjective outcome measures in open label studies and changes in outcome measures part way through a study. So it's good to bring it to the forefront again. If you don't start with a well-defined patient cohort any study results will be invalid, no matter how good or bad the study methods are afterwards.

    Somewhere I saw the analogy that confounding the symptom chronic fatigue with the illness ME/CFS is like confounding the symptom headache with the illness migraine. Imagine you collected a bunch of people with sore heads, of any sort, and used that cohort to find a treatment for migraine. Likely you'd reach the conclusion that aspirin was effective for migraine!
     
  9. Grigor

    Grigor Established Member (Voting Rights)

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    Conflating of chronic fatigue with ME It's amazing that "professor" and "evidence based" are part of Knoop's title description
     
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  10. Webdog

    Webdog Senior Member (Voting Rights)

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    As New York State Health Commissioner, Howard A Zucker, wrote in May of last year (bolding mine):
     
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  11. Barry

    Barry Senior Member (Voting Rights)

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    A couple of hundred years ago or so it would have been Wizard, Shamen, Soothsayer, etc.
     
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  12. Grigor

    Grigor Established Member (Voting Rights)

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    Exactly That's why I also added a picture of a magician Though that's already way too much credit for Knoop.
     
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  13. Alvin

    Alvin Senior Member (Voting Rights)

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    It can be worth shortening and seeing if it can be published, or even submitted as an opinion piece
     
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  14. Grigor

    Grigor Established Member (Voting Rights)

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    I know. But PEM is in the way at the moment
     
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  15. Alvin

    Alvin Senior Member (Voting Rights)

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    I understand :banghead:
     
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