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Submissions on Draft Scope for the NICE Guideline Review, 2018

Discussion in '2020 UK NICE ME/CFS Guideline' started by NelliePledge, Jul 27, 2018.

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  1. James

    James Established Member (Voting Rights)

    Messages:
    90
    Agree that Malaise is a poor descriptor for a general exacerbation of any and all symptoms but the word Lassitude was once in common use describing similar physical states experienced by multiple sclerosis patients. An adjustment in the universal translator has relegated a word that describes feeling a little peaky into a less frequently used descriptor, similar changes in vocabulary will be a future requirement if some understanding of the lived experience is going to be conveyed.
     
    James, Aug 2, 2018
    #21
    alktipping likes this.
  2. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,385
    Oh ... I always thought it was you in the midst of a GET session ... gently explaining to your therapist the error of their ways :p:)
     
    Barry, Aug 2, 2018
    #22
    Graham and NelliePledge like this.
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