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Study protocol for POSITIF, ... feasibility trial of a brief cognitive-behavioural intervention ... for post-stroke fatigue, 2020, Gillespie, Chalder

Discussion in 'Health News and Research unrelated to ME/CFS' started by Sly Saint, Jul 13, 2020.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Study protocol for POSITIF, a randomised multicentre feasibility trial of a brief cognitive-behavioural intervention plus information versus information alone for the treatment of post-stroke fatigue


    https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-020-00622-0
     
    Sly Saint, Jul 13, 2020
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  2. John Mac

    John Mac Senior Member (Voting Rights)

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    POSITIF. Are these people capable of conducting a study without a catchy name. It's all about the marketing with them, think of a catchy title then build a study around it.
     
    John Mac, Jul 13, 2020
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  3. NelliePledge

    NelliePledge Moderator Staff Member

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    NelliePledge, Jul 13, 2020
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  4. Trish

    Trish Moderator Staff Member

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    Going off topic a bit - I assume this is the result of a Priority Setting Partnership process. It does worry me that these are being used to justify funding for this sort of Chalder junk trials. That's why I'm glad S4ME is represented on the ME/CFS PSP process. We need to ensure we don't end up with it justifying more crap psych research. It is concerning that with fatigue occurring in so many conditions, the Chalder CBT gravy train rolls on.
     
    Trish, Jul 13, 2020
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  5. strategist

    strategist Senior Member (Voting Rights)

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    It's CBT for ME applied to post stroke fatigue. With a no treatment control group compared to a placebo and expectation setting pseudotreatment. And a study name that could be a caricature.
     
    Last edited: Jul 13, 2020
    strategist, Jul 13, 2020
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  6. Sarah94

    Sarah94 Senior Member (Voting Rights)

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    I think they need a spelling intervention
     
    Sarah94, Jul 13, 2020
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  7. rvallee

    rvallee Senior Member (Voting Rights)

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    The people who approved this are a complete joke. Chalder is a lost cause, that's not an issue, many people are. But there are people who oversee her work and give approval for doing the exact same things in loops despite never delivering anything and that's just wrong. It makes a mockery of not only the system of medicine but the entire system of science.

    And the obsession with fatigue despite Chalder being totally clueless about what it even means. You can't teach something you don't understand. Evidence-based medicine needs to be dismantled entirely, it has clearly failed while appearing to serve no specific purpose that cannot be served otherwise.
     
    rvallee, Jul 13, 2020
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  8. NelliePledge

    NelliePledge Moderator Staff Member

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    Maybe a poem - rhyming options digestif, aperitif
     
    NelliePledge, Jul 13, 2020
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  9. Amw66

    Amw66 Senior Member (Voting Rights)

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    Amw66, Jul 14, 2020
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  10. Adrian

    Adrian Administrator Staff Member

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    The only interesting thing from such trials would be to compare the different response biases that they measure with different diseases.
     
    Adrian, Jul 14, 2020
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  11. Hutan

    Hutan Moderator Staff Member

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    Post Stroke Intervention Trial - In Vain Expectation, POSITIVE
     
    Hutan, Jul 14, 2020
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  12. Hutan

    Hutan Moderator Staff Member

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    Post Stroke Intervention Trial - InValid Evidence, POSITIVE
     
    Hutan, Jul 14, 2020
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  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    POSITIF

    hmm no chance of any bias with a name like that
     
    Sly Saint, Jul 14, 2020
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  14. rvallee

    rvallee Senior Member (Voting Rights)

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    Apparently this would be the "feasibility" study: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0183286. Quoted because those things are always performative, with the conclusion written far in advance.
    1/3 dropped out.
    Everything is feasible if you just don't bother when it's not. What a total waste. The people overseeing this have failed completely in their duties.

    That is, unless this is an unrelated feasibility study for the exact same thing. Chalder does have a habit of doing the same things over and over without there being any connection between those.
     
    rvallee, Jul 14, 2020
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  15. Hutan

    Hutan Moderator Staff Member

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    Ha, the feasibility study for the feasibility study.

    @dave30th - one to watch
     
    Hutan, Jul 14, 2020
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  16. Sarah94

    Sarah94 Senior Member (Voting Rights)

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    Lmao
     
    Sarah94, Jul 14, 2020
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  17. TiredSam

    TiredSam Moderator Staff Member

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    I would like to posit the notion that this is decidedly iffy.
     
    TiredSam, Aug 8, 2020
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  18. NelliePledge

    NelliePledge Moderator Staff Member

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    come on. What you’re really saying is it’s positively iffy. Innit
     
    NelliePledge, Aug 10, 2020
    #18
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