1. Click here to sign the "Publish the NICE ME/CFS Guideline Now" petition.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 13th September 2021 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Stanford University ME/CFS research center gets $1.2M grant from OMF.

Discussion in 'General ME/CFS News' started by Joel, Dec 5, 2017.

  1. Joel

    Joel Senior Member (Voting Rights)

    Messages:
    902
    Location:
    UK
    Got this email from OMF:

    Ron Davis remains one of the smartest researchers involved in ME/CFS in my view and he's assembled a lot of other top researchers at the ME/CFS center at Stanford.
     
    Justy, Indigophoton, Angel27 and 35 others like this.
  2. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    4,536
    Location:
    Norway
    Great to see that these projects can start up!
     
    Allele, inox, Dolphin and 9 others like this.
  3. Ron

    Ron Established Member (Voting Rights)

    Messages:
    92
    A couple comments.
    I no longer see Dr. Kogelnik listed as being involved. I now see Dr. Kaufman's listed as part of the Scientific Team. Also Dr. Montoya is listed as part of some working group which I've not seen his name before.
    Last, I noticed in this funding announcement that they list: "T cells and molecular immunology of ME/CFS" as one of the top priorities. I guess this is the Mark Davis research?
    I thought Mark Davis was involved with Dr. Montoya on this?
     
    Andy, Trish, Inara and 3 others like this.
  4. Joel

    Joel Senior Member (Voting Rights)

    Messages:
    902
    Location:
    UK
    My understanding which may be out of date is that Montoya though at Stanford runs separate ME\CFS research to the ME/CFS center set up by Ron Davis. But there is some collaboration too. Not sure if the T cell stuff is led by Mark Davis or someone else/something different but I'd imagine he's involved given his field.
     
  5. Estherbot

    Estherbot Senior Member (Voting Rights)

    Messages:
    185
    Inara likes this.
  6. BurnA

    BurnA Senior Member (Voting Rights)

    Messages:
    402
    I had the impression Montoya was not involved with Ron Davis' research.
    Montoya works in a different dept in Stanford and while I think he might have provided patients for research in the past I don't think he was directly involved with OMF / SGTC.
     
    ukxmrv, dannybex, Inara and 2 others like this.
  7. Estherbot

    Estherbot Senior Member (Voting Rights)

    Messages:
    185
    Sure, he works in a different department but apparently he was a rather put out at not being invited to the Stanford Symposium. It was him who got Mark David involved...


    Rather odd not to pool expensive resources: staff & equipment...the Ron Davis lab was also heavily criticised in the NIH feedback...
     
    ukxmrv, Inara and Ron like this.
  8. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,065
    Location:
    Hampshire, UK
    https://www.mailman.columbia.edu/pu...yelitischronic-fatigue-syndrome-collaborative
     
    Justy, dannybex, Inara and 2 others like this.
  9. BurnA

    BurnA Senior Member (Voting Rights)

    Messages:
    402
    I notice he is listed in the working group section on the website.

    I don't know why Dr Davis did not invite him, but I don't think pooling resources has much to do with this study. Everything will come at a cost, I am surprised there are so many people listed, there certainly isn't enough money to pay for all them full time.
     
    Aroa, Inara, Andy and 1 other person like this.
  10. Estherbot

    Estherbot Senior Member (Voting Rights)

    Messages:
    185
    The working group is people who have offered their services not active participants.

    Mark Davis works in a separate department to Ron Davis.

    In his recent video, Ron Davis complained about being supplied with poor quality samples.

    Montoya has published a access to the patients in his ME/CFS, rather odd not to use them.

    The NIH also pointed out that Ron Davis has no track record of publication, where as Montoya's lab has published 2 major ones.

    1 the Jarred Younger Leptin study
    2 the Mark Davis cytokine paper.

    It's all rather daft, that resources are not pulled considering the cost of equipment and staff.

    Patients are the ones who suffer due to any clash of egos. *Sigh*
     
    Mij, Inara, Ron and 1 other person like this.
  11. Adrian

    Adrian Administrator Staff Member

    Messages:
    5,676
    Location:
    UK
    Sometimes if people have competing theories and different directions it makes sense to keep them separate. Trying to force groups together can cause conflict. If there are two different bets at Stanford that seems like a good idea.

    However it is a shame they don't share samples and other equipment
     
    Justy, Valentijn, inox and 6 others like this.
  12. Joel

    Joel Senior Member (Voting Rights)

    Messages:
    902
    Location:
    UK
    Do we know it's down to egos or is this just speculation? I don't know anything about it but it might be for all kinds of reasons I'd have thought: different ideas, focus, funding restrictions, goals etc. I personally don't mind having a few different groups working on different things, to me that increases our chances as its best not to have all our eggs in one basket, although I hope all groups communicate with each other and collaborate where it makes sense. Hopefully that's happening and as Montoya is listed in the working group (I'm not really clear what the working group is though) it does seem there is some collaboration going on.
     
    Inara, Justy, TrixieStix and 11 others like this.
  13. BurnA

    BurnA Senior Member (Voting Rights)

    Messages:
    402
    I don't follow what you are saying.

    I don't see anything daft.
    Just because Montoya isn't an active member of Ron Davis' research group doesn't mean it's daft or we suffer.

    The concept of sharing equipment also doesn't make sense, and wouldn't impact cost.
    Someone has to pay for a test regardless of whose lab it is run in.

    Regarding samples I think Ron Davis is the best person to know what samples are required and which ones are useful. He wants progress as fast as anyone so I doubt his ego is getting in the way of sharing samples if they could be useful.
     
    MarcNotMark, Justy, Allele and 8 others like this.
  14. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    We really need a disease mechanism, it will help immensely in almost every area from smashing the GET/CBT house of cards to a diagnostic test for ME/CFS to research directions to vectors to test treatments against. The fact they are focusing on T cells and genetics suggests this is what they think is a big part part of the condition.

    I wonder if they chose to remain separate as a NIH funding tactic.
     
    Inara, Joel, Skycloud and 1 other person like this.

Share This Page