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Solve ME/CFS Initiative: Discovery Forum 2017: Presentation of Dr. Ian Lipkin, Columbia University

Discussion in 'General ME/CFS news' started by Andy, Jan 11, 2018.

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  1. Andy

    Andy Retired committee member

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    https://www.youtube.com/watch?v=qDOgklnoPvo


     
    Andy, Jan 11, 2018
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  2. Forbin

    Forbin Senior Member (Voting Rights)

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    Forbin, Jan 11, 2018
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  3. Solstice

    Solstice Senior Member (Voting Rights)

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    Can anyone tell me the highlights? I ain't got the energy to watch the full clip, but pretty excited about the work they do.
     
    Solstice, Jan 13, 2018
    #3
  4. Trish

    Trish Moderator Staff Member

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    Just watched. A few highlights I recall:

    He talked about his own experiences over the last 3 decades with patients with ME/CFS and other conditions, including the work on demonstrating XMRV was not the cause of ME, and the good that came from that in the group built to work on it continuing to collaborate on future ME research.

    Other highlights for me - the difficulty of getting papers published when they are debunking a theory.

    The history of difficulty getting the NIH to fund ME research, for example his experience of applying 3 times for a particular project. The first time he was rejected because 'CFS is psychological', the second because 'CFS patients all have EBV', the third he got funding.

    And bringing up to date - pleased with the funding of the 3 centres, but lots of good projects 'left on the table' that should also have got funding.
     
    Last edited: Jan 13, 2018
    Trish, Jan 13, 2018
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  5. Esther12

    Esther12 Senior Member (Voting Rights)

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    Thanks for your notes Trish.

    That sounds interesting. Especially when some people still try to present XMRV/CFS as some sort of MMR/Autism parallel.
     
    Esther12, Jan 14, 2018
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  6. Diwi9

    Diwi9 Senior Member (Voting Rights)

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    He also mentioned that the Hutchinson Foundation has some new findings. Sounds like there should be some sort of publication soon.
     
    Diwi9, Jan 14, 2018
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  7. petrichor

    petrichor Senior Member (Voting Rights)

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    I think that was a very good talk. He seems like a competent scientist, and the comments he made towards the end about attitudes towards earmarking funding in institutions and governments were interesting.
     
    petrichor, Jan 15, 2018
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