News from Germany

That's great news, and only €100 for 50 minutes on the phone and a cure. Or only €16 for an email. Unfortunately I won't be able to reclaim it from my health insurance company, because they don't recognise alternative practitioners, and she doesn't seem to have any other qualification. Oh well.

https://www.youtube.com/watch?v=vEzP-ybCY7s

"Now you are probably thinking that I am crazy and that I am a very bad and shameless rascal".

Worth watching just for the comedy moments. Maybe I'll get in touch and offer her some English lessons.

 

Listening to the video, she seems sincere and to have suffered a horrible health situation. But that doesn't excuse setting herself up as an authority not only on M.E. but also depression (which she can cure in 6 months) and other health conditions, and peddling deluded health quackery at a price. Why not start a blog and share her anecdotal knowledge for free instead of putting on a white lab coat, hanging a stethoscope round her neck and posing as a medical expert on youtube? It does seem a bit rascally to me.

 

Personal: Thank god you can speed up to 2x on youtube vids so you can get triggered by her saying 'CFS syndrome' without investing more than 10 minutes. RIP in peace my poor nerves.

Cliffs: Claims to have found the cause of ME/CFS and developed a 'healing method' for it (and every single other mental health problem she apparently knows) but not a single reference to what either is supposed to be apart from it being 'natural', offers a 30+ page pamphlet for the price of a full book, reads her notes with the speed of a reasonably well recovered post-apoplectic person so possibly isn't actually recovered, asks for endorsement if you have managed to convince yourself you did not get scammed out of your time and money. Positive highlight is the excellent book 'ME vs CFS' by Katharina Voss on her shelf. Or the aforementioned stehoscope, can't decide.

Predictions: Will probably play the victim as soon as challenged despite not offering the slightest insight on whatever it is she may be talking about/selling and deflect via straw man type arguments.

Recommendation: Use opportunity for personal growth and try not to be annoyed. Gonna work on that now for myself.

 

Priceless. Feel sorry for her, but more than anything I had a good laugh.

Her own words:

Puzzle piece by puzzle piece, got groundbreaking insight, and then managed a complete cure. Healing will start within days, it will take maximum 6 moths to heal yourself completely. She says it is not expensive, neither requires a visit to the doctor.

Sounds familiar? Close to something you heard before, that origin out of a trademarked method from England?

Seems like the german version of LP?

 

This book and the author are quite popular in the German ME/CFS community. The problem is that it is a mix of good with questionable content. The author shares Judy M.'s views on ME/CFS. (She does not share Judy M.'s views on Corona, I am quite sure.)

 

She seems to be a relatively unimportant tiny quack.

 

CyborgDB

imagine this might be robot/computer generated(?) pretty awful but quite funny in parts:
https://pmtctdonations.org/chronisches_erschoepfungssyndrom-2672

@TiredSam

 

I've actually gotten around to really reading the first bits instead of using it to look up references and I must admit I do feel compelled to correct myself. When the book first came out I skimmed the entire thing and read some parts I was particularly interested in but there was no way I was gonna make it through 500 pages of rather dense material - the content seemed good when read this way.
I guess I have learned more about ME/CFS since then and hopefully gotten better at discriminating things and I am having trouble finding more than a couple pages where there is nothing I would, at the very least, phrase differently. It is almost impossible to tell apart the good from the questionable bits without background knowledge. It is most certainly a well-intentioned and referenced book, but in my opinion there is a large amount of attack surface.

 

Probably? English is hard nowadays... I meant to say something along the lines of 'taking it apart on an intellectual level'. Sorry if what I write is weird occasionally, it is like not all the words I once knew are always available and I lose sight of what I've written half a sentence ago due to memory issues so what I write may be occasionally weird.

 

That sounds familiar ... I think many to most with ME might struggle with this. You are not alone. I struggle with this too.
PS What @Sean said.

 

There appears to be news from Germany. They may even be of the good persuasion. I think.

https://www.gesundheitsforschung-bmbf.de/de/11004.php

https://twitter.com/user/status/1314536394946117632


https://twitter.com/user/status/1314568942078308355


https://twitter.com/user/status/1314630756648529932

 

Yes! Very surprising that the German Federal Ministry of Education and Research mentioned ME/CFS on Twitter and Facebook. Possibly for the first time ever (on social media or anywhere else). And that they used the hashtag #MECFS.

But the call for research proposals itself does not refer to ME/CFS. It's for underresearched diseases in general. So applications for many diseases can be submitted. It's not funding designated to ME/CFS and the funding might not go into ME research.

But it's progress that the existence of ME and the need for more research is acknowledged at all!

 

There is an other project the German Federal Ministry for Research and Education wants to follow.

could become problematic with the current situation of the Cochrane GET review

@Hilda Bastian

 

Not which "already existing funding opportunities" those are but OK:

https://twitter.com/user/status/1315937505603186689

https://twitter.com/user/status/1315928441338957833

 

https://twitter.com/user/status/1332281936631443456

Code:

https://twitter.com/loy_daniel_de/status/1332281936631443456

 

https://twitter.com/user/status/1339542250683047937




Automatic translation: