Report: (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022

Andy

Andy

Retired committee member
"This report analyses survey responses from ten NHS Health Boards in Scotland to understand delivery of ME/CFS services, implementation of the updated ME/CFS NICE guidelines, barriers and opportunities to implementing the guidelines, and options for future ME/CFS service development."

https://www.gov.scot/publications/m...alysis-surveys-issued-nhs-boards-autumn-2022/


MEAction Scotland on Twitter

"This week, @scotgovhealth published findings from an analysis of surveys issued to NHS Health Boards in Autumn 2022, to understand existing support for #pwME (or lack of, as we would argue) and implementation of the 2021 NICE guideline."

"Pleased to see the publication of the report, & the acknowledgement that the survey was a direct result of #MEAction Scotland's meeting with the then Cabinet Secretary for Health, @HumzaYousaf. We'll be calling on @MathesonMichael & @jenni_minto to take this work forward."

"Disappointing to see that 4 Health Boards chose not to respond - @NHSHighland, the largest Board geographically, @NHS_Lothian, one of few identified as having a specific support pathway, @NHSaaa & @NHSGrampian. Also, not all of the 10 who did respond answered all questions."

"We'll go through the report in detail & share a full response when we can (many of us are recovering from last week), but it's clear it conveys the inconsistent approach to #MyalgicE across #Scotland & supports our call for @scotgov funding to increase education & resource."

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It's great that this report has been made. Understanding the problem is the first step to fixing it.
MEAction Scotland said:
Pleased to see the publication of the report, & the acknowledgement that the survey was a direct result of #MEAction Scotland's meeting with the then Cabinet Secretary for Health, @HumzaYousaf.
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MEAction Scotland have done very well. When I went to make the link to the News from Scotland thread, I saw that MEAction Scotland has been consistently working towards this since at least 2021. :thumbup:

On the twitter thread, someone notes
I’m absolutely disgusted to read that @NHSGGC are implementing a Lightning Process programme for ME & Long Covid patients, despite the NICE guidelines expressly forbidding this.
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That's NHS Greater Glasgow and Clyde. Disappointing indeed.

Also on the twitter thread, MEAction Scotland say that they are calling for a patient survey to go alongside the report. That would support or cast doubt on the claims the NHS Health Boards are making, and add further information.
 
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Hutan said:
It's great that this report has been made. Understanding the problem is the first step to fixing it.

MEAction Scotland have done very well. When I went to make the link to the News from Scotland thread, I saw that MEAction Scotland has been consistently working towards this since at least 2021. :thumbup:

On the twitter thread, someone notes

That's NHS Greater Glasgow and Clyde. Disappointing indeed.

Also on the twitter thread, MEAction Scotland say that they are calling for a patient survey to go alongside the report. That would support or cast doubt on the claims the NHS Health Boards are making, and add further information.
Click to expand...
NHS Greater Glasgow and Clyde use the former Homeopathy hospital relabelled as a centre for integrative care . Perhaps not so surprising LP is part of this.
 
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