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"Rap for Good" and Action Alert for Twitter

Discussion in 'Advocacy Action Alerts' started by Joh, Sep 26, 2019.

  1. Joh

    Joh Senior Member (Voting Rights)

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    Please tweet today (or in the next days) to the German health minister to support German pwME.

    You could copy this tweet:
    (translation: @jensspahn Research for #mecfs now!
    #millionsmissing #rapforgood)

    We're trending on Twitter in Germany!

    "Rap for good" is an amazing charity concert that takes place in Berlin tonight. 3000 guests and the viewers at the livestream (over 6000 views so far) were told about ME and repeatedly asked to tweet to the German health minister.

    THANK YOU for your support! :)

    Livestream:

     
    Last edited: Sep 27, 2019
  2. Joh

    Joh Senior Member (Voting Rights)

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    Screenshot from the livestream:

    Bildschirmfoto 2019-09-26 um 22.34.50.png
     
    Last edited: Sep 26, 2019
    Hutan, Lisa108, Amw66 and 6 others like this.
  3. Joh

    Joh Senior Member (Voting Rights)

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    #MillionsMissing Germany is at the concert with an info booth. Donations go to a German ME patient (who is in her 30ies and worked in the music business before she became too sick and is a friend of the artists) and the Open Medicine Foundation.

    The music acts are the most popular rap and hip hop artists in Germany. They all played for free. The concert was sold out (3000 tickets). They talked several times about ME/CFS on stage. :) And some of them posted about ME on social media.
     

    Attached Files:

    Last edited: Sep 26, 2019
    Comet, Hutan, Michiel Tack and 16 others like this.
  4. rvallee

    rvallee Senior Member (Voting Rights)

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    It's really disappointing that Twitter has removed the translate tweet option. I still kept most of my languages-I-do-not-speak account follows in the hope that they bring it back later but meanwhile it removes a lot of accessibility.

    Makes sharing tweets in another language less useful too. I liked several of those tweets but I'm not always sure what it is I'm amplifying.

    Great event, though. Grateful to those participating and hopefully change the dreadful neglect in Germany!
     
    Hutan, MeSci, It's M.E. Linda and 7 others like this.
  5. Michiel Tack

    Michiel Tack Senior Member (Voting Rights)

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    Wow! Thanks to everyone who made this possible!

    Advocacy seems to be growing in Germany. I hope the situation will improve there.
     
    Hutan, petrichor, MeSci and 5 others like this.
  6. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    If you click on the post, it then displays (at least for me) the Translate Tweet link, which if clicked, will provide a Google translation. But I agree, I preferred the old system where the link for a translation displayed in one's feed, without the need to click on the post.
     
    petrichor, Joh and rvallee like this.
  7. strategist

    strategist Senior Member (Voting Rights)

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    Germany is horribly backwards in some ways. They love homeopathy, psychosomatic medicine and Freud.

    Glad that things are improving though.
     
    TiredSam, diwa, Michiel Tack and 2 others like this.
  8. rvallee

    rvallee Senior Member (Voting Rights)

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    Oh, sweet! Didn't notice it there. Thanks!
     
    Joh likes this.
  9. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    You're welcome. I only discovered this, myself, a couple of weeks ago. I wish they would stop making changes to Twitter, the changes in the summer now make it very difficult to follow threads.
     
    rvallee, Michiel Tack and Joh like this.
  10. Joh

    Joh Senior Member (Voting Rights)

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    There was some media attention for the charity concert (this is a selection).



    Great short coverage on national tv: https://www.zdf.de/nachrichten/heute-plus/videos/rap-gegen-erschoepfungs-syndrom-100.html



    The same public broadcasting station also tweeted and posted on Facebook:




    Article with the headline:
    https://www.tagesspiegel.de/gesells...heitssystem-in-den-arsch-treten/25062158.html



    Post from #MillionsMissing Germany:
     
    ahimsa, rvallee, Snowdrop and 7 others like this.

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