Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

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I would wait a few days. NICE isn't the fastest and with big decisions, they'll need time to get things right.

If it comes before next week, that'll be a lovely treat, but they'll probably have to contact stakeholders first with additional (probably embargoed) information and then release the guideline after that.

That means at least a few days will have to occur between meeting and publication.
 
Kirsten said:
You joke but my sleepy brain seems to recall a fad on breathing properly that folks were randomly recommending (good old unsolicited advice) to me about 5 years ago? I remember watching a YouTube video and apparently we all do breathing wrong... Wish i could remember more, i'm sure we could all do with a laugh today.
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Breathing for ME is a thing, one of the doctors of renown in the US recommends it, I can't remember which one. I got a breathing app and practiced breathing lying on the floor for a few weeks, but it made no difference and I got bored so I stopped.

I was asked today whether I'd tried yoga.
 
adambeyoncelowe said:
That means at least a few days will have to occur between meeting and publication.
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I had been hoping today there would have been an announcement of the timescale for publication, rather than the actual publication itself.

I agree they will want to contact steak holders and sort press releases etc before publication. So though Friday might have been a possibility a longer delay was always equally possible, especially as we don’t know how they plan to pursue the clarifications coming out of the round table event.
 
[QUOTE="chrisb, post: 385035, member: 34m]Doesn't that quote in the source cited refer to Wessely?[/QUOTE]
Yes.. but
[QUOTE="Peter Trewhitt, post: 385430, member: 470"

I agree they will want to contact steak holders and sort press releases etc before publication.[/QUOTE]
Couldn't resist Peter.
Even looks like Dr P!
 

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I wouldn't bother. I think they will publish the minutes of the roundtable and a date for publication of the guideline this week, and publish the guideline next week. I have no evidence to support that. I just don't think it's in NICE's interests to spring the guideline on everyone without warning of the publication date.
 
TiredSam said:
Breathing for ME is a thing, one of the doctors of renown in the US recommends it, I can't remember which one. I got a breathing app and practiced breathing lying on the floor for a few weeks, but it made no difference and I got bored so I stopped.

I was asked today whether I'd tried yoga.
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It is said that breathing a certain way can stimulate the vagus nerve, in a similar way to micro current devices
 
Trish said:
I wouldn't bother. I think they will publish the minutes of the roundtable and a date for publication of the guideline this week, and publish the guideline next week. I have no evidence to support that. I just don't think it's in NICE's interests to spring the guideline on everyone without warning of the publication date.
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I agree. I very much doubt we will see the finalised guideline and associated documents and resource materials this side of the weekend.
 
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