Post Ebola Syndrome

rvallee

rvallee

Senior Member (Voting Rights)
A Twitter user pointed out this interesting tidbit: survivors of Ebola seem to display similar symptoms to ME. This isn't particularly new but potentially very interesting.
In most cases, people who have completely recovered from EVD do not go through a comeback of the illness. However, many survivors suffer from health issues after recovery from Ebola.

The most commonly reported complications are:
  • Tiredness
  • Headaches
  • Muscle and joint pain
  • Eye and vision problems (blurry vision, pain, redness, and light sensitivity)
  • Weight gain
  • Stomach pain or loss of appetite
Other health problems can include memory loss, neck swelling, dry mouth, tightness of the chest, hair loss, hearing problems (ringing in the ears and hearing loss), pain or tingling in the hands and feet, inflammation of the pericardium (tissue around the heart), inflammation of one or both testicles, changes in menstruation, impotence, decreased or lost interest in sex, difficulty falling or remaining asleep, depression, anxiety, and post-traumatic stress disorder (PTSD).[1]–[9]

The timing of onset, severity, and duration of complications among EVD survivors are variable.
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Is it closer to ME or PVFS? Are those different other than a better prognosis for the latter? Not sure enough time has passed to be certain. Would have been interesting to know what % and whether there is a spectrum.

Really past time for medicine to get its act together and accept that the calculus isn't a simple matter of active infection = illness, no active infection = all done and resolved.

https://www.cdc.gov/vhf/ebola/treatment/survivors.html
 
Interesting. It is already well known that hemorrhagic fevers—the group of diseases that ebola belongs to—is a cause of post-viral fatigue syndrome.
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rvallee said:
Is it closer to ME or PVFS?
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I think (benign)ME and PVFS are classified by the WHO as the same.

but re the post-ebola virus syndrome:
from Wiki
https://en.wikipedia.org/wiki/Post-Ebola_virus_syndrome

Studies from previous outbreaks reveal that the virus is able to survive for months after recovery in some parts of the body such as the eyes and testes, where the immune system cannot reach. It is not known if the neurologic symptoms seen in survivors are a direct result of the virus or, instead, triggered by the immune system’s response to the infection. It is known that Ebola can trigger a massive cytokine storm that can cause bleeding throughout the body, including the brain, which may explain various neurological symptoms that have been reported.[11]
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With the knowledge we have now, I think it is fair to say that post infectious syndromes have ME-like symptoms without the broken aerobic system and the PEM. Far too often we hear that things are like ME from professionals who think ME is chronic fatigue.

ME may present as a PVS in the early stages but i believe that a diagnostic test will pick out the differences.

My husband had a bad PVS that lasted almost a year but it never crossed our minds that it had anything in common with my ME. He had fatigue mainly while I had fatiguability and neurological symptoms.
 
Obermann said:
upload_2019-10-9_8-38-17-png.8659
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One item here is flat-out wrong. Whatever you may think of the Lyme controversy, even the most strident and conservative IDSA stalwarts will admit that Borrelia Burgdorferi can cause persistent infection. They think it's exceptional, but they admit it does happen. ILADS advocates contend not only can it happen, it happens with frightening frequency.

My point here is this chart says Bb is an organism causing no persistent or latent infection. If they've got that wrong, what else here is written as a certitude that is not, ie, what else have they gotten wrong in this chart? What "facts" are out there in medicine that are taught as "facts" but are simply wrong? How prevalent is misinformation?
 
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They are referring to Ebola as a latent virus.

This ‘resurrected’ virus, transmitting from people who recovered from an Ebola outbreak five years ago, suggests that sometimes survivors still harbour the virus many years later.

“This is very surprising and very shocking,” César Muñoz-Fontela of the Bernhard Nocht Institute for Tropical Medicine in Germany told New Scientist. Muñoz-Fontela was in Guinea during the previous Ebola epidemic. “It’s like a relapse.”

https://cosmosmagazine.com/health/body-and-mind/ebola-resurfaced-some-viruses-are-never-really-gone/

Behind paywall

https://www.nature.com/articles/d41586-021-02378-w
 
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