Post Covid-19 Syndrome naming

A fourth request for creation of a new Concept term for SNOMED CT UK Edition has been submitted today:

https://isd.hscic.gov.uk/rsp-snomed/user/guest/request/view.jsf?request_id=33248

Request ID 33248, Submitted 20 October 2020:

snomed-request-20-oct-2020.png
 
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Merged thread
Others can feel free to decide whether this fits well in a particular thread

Free full text:
https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofaa509/5934556
Post-Acute COVID-19: An Overview and Approach to Classification

Eva M. Amenta, MD1 , Amy Spallone, MD2 , Maria C. Rodriguez-Barradas, MD2,3, Hana M. El Sahly, MD2,4, Robert L. Atmar, MD2 , Prathit A. Kulkarni, MD2,3

1General Internal Medicine, Department of Medicine, Baylor College of Medicine, Houston Texas 2 Infectious Diseases Section, Department of Medicine, Baylor College of Medicine, Houston, Texas
3Medical Care Line, Michael E. DeBakey Veterans Affairs Medical Center, Houston, Texas 4Department of Molecular Virology and Microbiology, Baylor College of Medicine, Houston, Texas
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Abstract

As the coronavirus disease 2019 (COVID-19) pandemic has progressed, a large volume of literature has developed delineating the clinical manifestations of acute infection.

Recent reports have also started to describe persistent symptoms extending beyond the period of initial illness or hospitalization.

Anecdotes of different signs and symptoms occurring after acute infection have also arisen in the lay press.

Here we describe the current existing medical literature on the emerging concept of post-acute COVID-19 and suggest an approach to classifying different manifestations of the syndrome.

We also review long-term clinical manifestations observed in patients who recovered from infection due to other epidemic coronaviruses and briefly discuss potential mechanisms driving the phenomenon of post-acute COVID-19.
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Post-acute clinical syndromes in other epidemic coronaviruses

Post-acute symptoms have been observed in a variety of infections, such as Epstein-Barr virus, dengue fever, tick-borne encephalitis, influenza, West Nile virus, Chikungunya, Zika virus, and Ross River virus, among others [38]. With regard to epidemic coronaviruses specifically, Tansey et al assessed health outcomes in patients who had recovered from SARS-CoV up to 1 year after discharge and found that more than half of patients were continuing to experience fatigue and sleep disturbances [39]. Another 4-year follow-up study of SARS-CoV patients found that almost 50% still suffered from chronic fatigue, and over one-quarter qualified for a diagnosis of myalgia encephalitis/chronic fatigue syndrome (ME/CFS) [40]. In 2015, the National Academy of Medicine published proposed diagnostic criteria for ME/CFS [41]. Summarizing, these criteria state a patient diagnosed with ME/CFS should have the following clinical findings: (1) substantial impairment in the ability to engage in pre-illness activities for more than 6 months, along with profound fatigue not alleviated by rest; (2) post-exertional malaise; and (3) unrefreshing sleep. Additionally, patients meeting criteria for ME/CFS should also have either cognitive impairment or orthostatic intolerance.
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I would suggest posting it in this existing thread:

Post Covid-19 Syndrome SNOMED coding

https://www.s4me.info/threads/post-covid-19-syndrome-snomed-coding.16833/page-4


since that thread was created specifically for the development of coding and terminology for post COVID-19 symptoms/sequelae.


Edited to add:

This thread's title has been changed from:

Post Covid-19 Syndrome SNOMED coding

to the more appropriate title:

Post Covid-19 Syndrome naming

(Terminology and codes will be required to be developed for both ICD-10/11 and SNOMED CT.)
 
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"Published by Oxford University Press on behalf of Infectious Diseases Society of America 2020. This work is written by (a) US Government employee(s) and is in the public domain in the US. This Open Access article contains public sector information licensed under the Open Government Licence v2.0 (http://www.nationalarchives.gov.uk/doc/open-government-licence/version/2/)."

PDF attached below:
 

Attachments

A fifth request for creation of a new Concept term for "Long covid" [sic] for addition to SNOMED CT UK Edition was submitted on 27 October via the NHS Digital submission portal:

https://isd.hscic.gov.uk/rsp-snomed/user/guest/request/view.jsf?request_id=33336

Request ID 33336, Submitted 27 October 2020



For update from SNOMED CT's CEO, Don Sweete, on status of development of new Concept code(s) see Post #72:

https://www.s4me.info/threads/post-covid-19-syndrome-naming.16833/page-4#post-297707


also Tweets from Prof Maureen Baker CBE in Post #61:

https://www.s4me.info/threads/post-covid-19-syndrome-naming.16833/page-4#post-295691
 
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https://royalsociety.org/news/2020/10/urgent-need-to-understand-long-covid/

Urgent need for more research to understand Long Covid
28 October 2020

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Royal Society Report (23 October 2020)

Long Covid: what is it, and what is needed?

https://royalsociety.org/-/media/policy/projects/set-c/set-c-long-covid.pdf

This paper is provided to SAGE and UKRI to raise awareness of the emerging syndrome that has become known as Long Covid, among both the public, the medical profession and politicians and to promote investigation of the predisposing factors, the clinical features and the pathogenesis of the condition, in order to lead to better diagnosis and clinical management.

The Royal Society identifies questions that need urgent attention in clinical and laboratory research. This paper is a pre-print and has not been subject to formal peer-review.

[Report attached]
 

Attachments

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Dx Revision Watch said:
Royal Society Report (23 October 2020)

Long Covid: what is it, and what is needed?

https://royalsociety.org/-/media/policy/projects/set-c/set-c-long-covid.pdf
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The diversity of symptoms and their variable and unpredictable course have generated confusion and uncertainty in both the medical profession and the public. Consequently, many patients have had their disabling or alarming symptoms ascribed to anxiety or depression, or simply dismissed. Long Covid bears a strong resemblance to an ill-defined syndrome usually called post-viral fatigue, whose pathogenesis remains obscure and which is thought by some to lack an organic basis.

The pathophysiology of Long Covid, which may differ from that in the acute illness, warrants detailed investigation.
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