Unfortunately it is a fact of life that everyone passes away eventually. It would be great if people with the illness considered supporting ME or CFS causes in your will. There are different sorts of charities and funds one can support e.g. research or non-research. Many of us can struggle to give much when we are alive, but some people can have assets when they pass away (including sometimes considerable assets e.g. a property). Those who were left behind would really appreciate any support you can give to us. https://twitter.com/user/status/1008421688378347525 https://twitter.com/user/status/1008425287787466752
good thread @Tom Kindlon obviously for those who have children this may be more difficult but even small legacies from everyone with ME would add up over time. As someone who doesnt have a partner or children and now mid 50s I never bothered doing a will until a very good friend died and I helped her partner with the probate form. This made me realise I needed to make clear what would happen to my estate ( no its not Downton Abbey I have a small house) I put in a few thousand quid for an ME charity that does fund proper research. I wish it was a few 100k but my house isnt in Chelsea.
Don't - they would just twist it and claim it's a demonstration that "patients support what we are doing by contributing financially to our research". (call me cynical...)