Plasma exchange

Heyho,
short introduction from my side, im from germany ( english is not my native language so please overlook possible grammar mistakes I got CFS after an infection with the legionnaires disease in 2014. I tried a lot of different therapies by now (some examples: Rituximab, Rapamun) and im now short before a plasma exchange treatment bc im still a big believer this disease is an autoimmune problem aka autoantibodies vs adrenergic/muscarinergic receptors and i hope i can at least see a short term relief in symptoms when they are gone for some time.

My question, did anyone else here try it before ? Did it help you and if yes for how long?
Thanks in advance

 

Yes, I have had double exchange plasmapheresis in Thailand. No, it did not help. Yes, it would not hurt.

 

Thanks a lot for the answer. Dont know what to expect but will definitely give it a try. I was tested positiv for ß2, M2 and nociceptin receptor autoantibodies. So lets see how life is without them for a while.

 

hey!

did you have plasma exchange yet?

ty

 

I did have one cycle of 7 exchanges over 10 days. Not gonna lie it was pretty exhausting. Sadly it did absolutely nothing for me.

 

hey, what dose of rapamune did you try? did it help at all? how severe are you?

 

Young plasma might help....maybe

https://www.s4me.info/threads/rever...ic-age-with-a-single-clock.15091/#post-259902

Somebody just posted a skeptical comment about the study on the preprint website

 

@butter. 4mg loading dose followed by 2mg for about a month. Did nothing. Im bedridden most time of the day.