Physios for ME

Good for them!

 

@NelliePledge, how does one not familiar with Twitter find out how to contact these physios? Or, is that not possible except via Twitter, as that's the only contact info available? Thank you in advance for your reply.

 

I've had a range of experiences with physios- from the terrible to the supportive and helpful. Really good that they are doing this.

 

A potential problem is how much it will be dominated by physios based in ME/CFS services that are unquestioningly committed to GET/CBT.

I do hope the group has some open minded and scientifically objective participants, if so it could be a positive step.

 

I have not seen this tweet but a physio in a local ME group I belong to has written of a few of them getting together. I’ll send her this link.

 

Thank you @Binkie4. I'm interested to see if their program takes a biomedical approach. It seemed like it might in the tweet. If they have appropriate info, I'm hoping to pass it along.

Thanks very much!

 

Have sent a message. It will be “onside” and very helpful.

 

Thank you @Binkie4.

Cheers!

 

If one goes to their account, one can also see a couple of tweets they retweeted.

 

Just had a response. It’s definitely biomedical as I knew it would be and she will try and get on here very soon.

 

Hello - this is us We're just kicking things off and the twitter account is the first thing to go live. We do have other ways of communicating planned but happy to chat on here in the meantime.

We come from a range of different clinical backgrounds and will be sharing more information on us all soon but just to reassure you we are most definitely biomedical!! At our first meeting yesterday we agreed that we do not think ME is a functional disorder or psychosomatic and this is a core principle for any other physios wanting to be part of the group.

We have lots of plans and are trying to get things up and running as soon as we can - we only started speaking to each other about 4 weeks ago! We will try and keep you posted as we go!

 

Welcome @PhysiosforME. Look forward to hearing your plans. Glad to see you here.

 

Will definitely do this as soon as we have got our other links in place so people can find us!

 

Welcome @PhysiosforME, this sounds like a very exciting venture.

 

I am really interested to see what comes of this, we need appropriate support to make the best of what capacity we’ve got and manage pain. I have been abandoned because I am not able to get to appointments but my osteopath does help me and help me target specific issues.

 

So am I @NelliePledge. Very useful