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Petition: Review treatment of people with ME in Scotland

Discussion in 'Petitions' started by Emsho, Apr 26, 2018.

  1. Emsho

    Emsho Established Member (Voting Rights)

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    Please help Scottish ME patients by signing this petition to the Scottish Parliament, calling for a review of the treatment of ME patients in Scotland, with a view to invest in biomedical research, education and care.

    Read the full details of what we're asking for here, anyone can sign: http://www.parliament.scot/GettingInvolved/Petitions/PE01690

    We've created a video to help spread the word about the petition and educate folks on why they should care about ME patients:

    It would be wonderful if you could sign the petition and share video!

    Also! Anyone know how to embed youtube videos into facebook/twitter posts? We've been trying for the past day.. :banghead:
     
    Ben McNevis, Graham, Allele and 27 others like this.
  2. Trish

    Trish Moderator Staff Member

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    That's a good video, well done to those involved. I hope you get lots of signatures.
    And welcome to the forum, @Emsho, I'm glad you've found us and joined.
     
    MEMarge, Allele, Joh and 8 others like this.
  3. Amw66

    Amw66 Senior Member (Voting Rights)

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    Good info, will share with family and on other parents' forums
     
    MEMarge, alktipping, Yessica and 5 others like this.
  4. Emsho

    Emsho Established Member (Voting Rights)

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    Thanks, never made a video before so it took a ridiculously long time! Luckily have got some very talented friends.

    And thanks for the welcome, I found the forum through your weekly round ups which have been so useful!

    @Amw66 that would be really helpful thank you :)
     
    Last edited: Apr 26, 2018
    Ben McNevis, MEMarge, Allele and 13 others like this.
  5. Melanie

    Melanie Senior Member (Voting Rights)

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    Very good work @Emsho, and Welcome! :emoji_boom:
     
    MEMarge, Allele, alktipping and 6 others like this.
  6. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Good to see you here @Emsho. Great work on the video & campaign :thumbup:
     
    Allele, alktipping, Melanie and 5 others like this.
  7. Andy

    Andy Committee Member & Outreach

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    Now up to 3,232 signatures.

     
    MEMarge, Allele, Joh and 5 others like this.
  8. Emsho

    Emsho Established Member (Voting Rights)

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    With offline and online signatures combined we have over 5,000 :emoji_champagne:

    Although the petition is still open for signatures, and has not been lodged yet, we have been contacted about the next stage (submitting evidence). I’d like to chat to someone running S4ME before posting anything else- @Andy is that you? I’m not sure who to dm.
     
    MEMarge, Joh, alktipping and 5 others like this.
  9. Andy

    Andy Committee Member & Outreach

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    Yes, I PM'd Emma in regard to the post directly above.

    From the MillionsMissing Scotland Facebook page,
    Code:
    https://www.facebook.com/MillionsMissingScotland/posts/2058090454512038
     
  10. alktipping

    alktipping Senior Member (Voting Rights)

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    good video shared to fb
     
    Emsho, Invisible Woman and Andy like this.
  11. Emsho

    Emsho Established Member (Voting Rights)

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    There's an hour and a half to go, and we only need 50 signatures to reach 7,000 (we've collected 1000+ offline) if you've not signed it yet please sign and share!
     
  12. Emsho

    Emsho Established Member (Voting Rights)

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    We made it! 7,036 :)
     
    MEMarge, RuthT, alktipping and 7 others like this.
  13. Amw66

    Amw66 Senior Member (Voting Rights)

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  14. Emsho

    Emsho Established Member (Voting Rights)

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    Next Action (not sure if should be new thread or not!) Scottish people, please contact your MSP,especially if your MSP is on the petitions committee that we're meeting with next week. Constituency MSPs on the committee are from FALKIRK EAST, ETTRICK, ROXBURGH and BERWICKSHIRE and STRATHKELVIN and BEARSDEN The two Regional MSPs are from GLASGOW and SOUTH SCOTLAND meaning anyone from Glasgow and South Scotland can contact them. Short parliamentary briefing and more details available here: https://www.meaction.net/2018/06/01/scottish-action-urge-your-msp-to-support-petition-for-me/
     
    Amw66, Andy, alktipping and 5 others like this.
  15. Andy

    Andy Committee Member & Outreach

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    MEMarge, Emsho, JohnM and 1 other person like this.
  16. Graham

    Graham Senior Member (Voting Rights)

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    Hey @Emsho , I am very impressed with the video. For a first one, that is amazing. The tempo, the variety, the tone!
     
    MEMarge, Emsho and Trish like this.
  17. Andy

    Andy Committee Member & Outreach

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    Code:
    https://www.facebook.com/meactionscot/posts/2200117796975969
     
  18. Andy

    Andy Committee Member & Outreach

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    MEMarge, Sly Saint, Barry and 5 others like this.
  19. Andy

    Andy Committee Member & Outreach

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    rvallee, SallyC, Sly Saint and 7 others like this.
  20. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    She also made particular mention of the evidence submitted by Professor Jonathan Edwards of UCL regarding the ‘building in’ of bias to studies such as the PACE trial, which claim to provide evidence for the efficacy of CBT/GET.

    Ah, now I can sew a Scottish Parliament badge on my scout's tee shirt.
     
    MEMarge, MeSci, JoanneS and 15 others like this.

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