Jonathan Edwards
Senior Member (Voting Rights)
Excellent response from Dr Katharine Cheston (@kacheston) —
Yes, that is very good.
Excellent response from Dr Katharine Cheston (@kacheston) —
My life is considerably worse now because of the efforts of Pedersen in Norway.I appreciate that the opinion piece is odious but I am a bit sceptical that it will have influence. The doctors who already think this way will continue to do so. Both those with a more critical approach and those in the middle are likely to see clearly that this is a piece of waffle by some authors who, if they check the bios, have no real business to be writing it anyway. Moreover, it provides everyone with an explicit account of just how bogus this approach is. This is the way homeopaths have always argued and most doctors have been trained to pick up that sort of bullshit, even if many of them allow themselves to backslide when it is convenient.
My life is considerably worse now because of the efforts of Pedersen in Norway.
The fact that this article exists is trauma-inducing in itself. It’s like letting an abuser break the restraining order every week, so the abuser can sit and yell more abuse at the abused for an hour. All because the abuser has power and is protected by friends in the police, and they insist on «dialogue».
And the worst part is if you’re severe is you know the abuser has infinitely more endurance and energy to keep on spouting his beliefs while it takes much of your day to counter what they wrote in 15 minutes.Yes and whats worse the abuser is going round convincing everyone we're not to be trusted and they need to abuse us too for our own good...
Dictators use propaganda even at the height of their power. I’m not sure I would take this as a sign of their influence diminishing. But I hope it is!It seems to me that this opinion piece is the authors pleading that people should listen to them; essentially "please listen to us, we have special knowledge that only we can share". If they were in a secure position of authority then they wouldn't need to be writing this appeal for people to take them seriously. While I understand how frustrating and triggering this will be for many, I view it as a pathetic cry for help from people who are becoming more and more sidelined.
This.The most dangerous thing anyone ever gave me for my ME was false hope.
Heard it on bluesky as well.Chat on Twitter has turned to legal challenge. I doubt it would eventuate but I hope the fact that is has been raised by multiple people independently might give the opinion piece authors pause for thought.
I don’t disagree but it is a measure of the power imbalance that that even when being sidelined they are commissioned to write an opinion piece for the BMJ.While I understand how frustrating and triggering this will be for many, I view it as a pathetic cry for help from people who are becoming more and more sidelined.
I don’t disagree but it is a measure of the power imbalance that that even when being sidelined they are commissioned to write an opinion piece for the BMJ.
Here’s hoping that one day some of us will be commissioned to write an opinion piece for the BMJ on the institutional and individual failures which resulted in the systematic abuse of people with ME/CFS.
That’s the position I’ve moved to. Dying gasps of an old order under threat or even as it moves into irrelevance.It seems to me that this opinion piece is the authors pleading that people should listen to them; essentially "please listen to us, we have special knowledge that only we can share".
"The CGI-I score is established by consensus within the multidisciplinary team, at the point of discharge..."
Wait what? The MDT completed this, not even the patient
That reads very much to me like a serious case of marking ones own homework? Or am I over reading that !
That is exactly, precisely, it.The fact that this article exists is trauma-inducing in itself. It’s like letting an abuser break the restraining order every week, so the abuser can sit and yell more abuse at the abused for an hour. All because the abuser has power and is protected by friends in the police, and they insist on «dialogue».
Indeed.Dictators use propaganda even at the height of their power. I’m not sure I would take this as a sign of their influence diminishing. But I hope it is!
Do you think this aspect of neuroplasticity might have a connection to sensory sensitivity, or is that too much of a stretch?
So do you think there is anything that I could be doing right now, to help my sensory intolerance?Oh yes, I think so.
I appreciate that the opinion piece is odious but I am a bit sceptical that it will have influence. The doctors who already think this way will continue to do so.
So I dont see how I could use exposure to desensitise because the more i am exposed the worse things get, not the other way around.
But I'd do anything, and i mean ANYTHING to help myself. Is ANY of the brain retraining ideas worth trying?