Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

Do you want a link to his criticism in this thread? If so, I believe that is what was in this earlier post,

 

@Binkie4 here is a link to the above comment in case you’re on mobile and can’t click through to posts from quotes:
https://www.s4me.info/threads/patie...re-2025-miller-et-al.44129/page-5#post-609350

 

Thank you @Andy and @Utsikt for your messages. Glad that his views are on here. I see I liked it last night but there is lots happening and the memory cells are not firing.

 

Oh, that is a great response. Great use of the Uno reverse card (your beliefs are hurting me, not mine). It's so important for experts to chime in on this, this is very much appreciated from Dr Cheston.

Then I would contend that they have not properly been trained about it . POSIWID.

This is why I place most of the blame on the institutions supporting the quacks, and not the quacks themselves. The quacks cannot be sued, being incompetent and lying is not a crime, not even a minor one. It would be up to their employer to punish them, and given that they are just as guilty of incompetence indistinguishable from malice, I doubt they would, and no one will make them.

What the institutions have failed to do, though, is definitely liable for civil damages. They have, and continue to, behaved recklessly, promote blatant pseudoscience, whose harm is sometimes documented in their own publications. This is something that is liable. Plus, the quacks will retire and die, while those institutions will endure. The harm on their reputations will go on long after the quacks are all dead and no new ones are being trained.

https://rationalwiki.org/wiki/Iron_law_of_institutions

 

Latest comment, "The risk of blaming patients for their lack of recovery", by Michiel Tack

https://www.bmj.com/content/389/bmj.r977/rr-3

As excellent as always.

 

A risk is the possibility of a negative consequence. So I would argue that blaming patients isn’t a risk of this article, because it has already happened. The risk would be that this article contributes to it happening for longer.

Edit: it’s still a great comment. I just think they could have gone further.

 

Ah but the old saying is that you can take a horse to water...

 

Still too many of those horses answering: "Not my cup of tea".

Confirming prejudice happens fast, changing minds takes much longer.

 

It needs data. I think we will get it. Zhang et al. is a good start.

 

I thought this blatant confession of love-bombing (a brain-washing technique) was priceless:

"It is key to have complete compassion and understanding for their experience and then to explain the science. When you do that, many people respond favorably - despite this not being mainstream ideas."

 

on what sorts of grounds?

 

what is the link for this response?

 

No specific legal grounds that I saw. It was more a desperate expression of hope from non-legal people in the ME community that there is a possibility because other avenues like rebuttals have not thwarted the BPS lobby’s continued success at getting published.

 

Dr Kennedy is a member of (EDIT -previously typed COFFI which was wrong) Oslo Chronic Fatigue Network , on the board of an organisation called Association for the Treatment of Neuroplastic Symptoms, and will be a presenter at its conference later this year, along with…… Phil Parker.

https://www.symptomatic.me/2025conference#!event-register/2025/9/28/2025-atns-conference

 

Oh dear God, "neuroplastic symptoms"?

It'd be funny if it weren't so bloody scary.

 

OK I've looked this lady up and herself, and Schubiner and CLarke ( Amazon.co.uk: David D. Clarke: books, biography, latest update ) all lead back to the same / similar workplaces (Kennedy has her own business Resilience Healthcare now by the looks), and the following organisation: About | Explore Our Mission

which seems to be one that has perhaps changed its name a few times, from American Psychophyiosologic Association to now Association for the Treatment of Neuroplastic Symptoms but also has Endchronicpain.org noted against it too.

 

new?? might be new to you but they've been rammed down our throats for years! new ideas, what tosh.

oh the irony

You mean you were present in their lives while they recovered. Not the same thing.

 

You say you want a revolution
Well, you know
We all want to change the world

You say you got a real solution
Well, you know
We'd all love to see the plan