"Patient's Charter for ME/CFS/PVFS"

There's a project under way to critique those, basically has several of the questionnaires and the intent is for patients to rate them. Not sure if he only promoted it or is behind it but Michael VanElzaker tweeted a few weeks ago. It lead to a few angry comments but the whole point is precisely to evaluate them (recognizing they are mostly bad but that's just where we are). I assume they got most of them.