TrixieStix
Senior Member (Voting Rights)
I came across this & found it interesting.
"So my talk today is not about the importance of patient engagement in research. Rather, I’m interested in a broader, more critical discussion.
In addition to asking ‘how do we do it better’, I propose we also need to ask ‘why do we do it at all’ – which is to say, what is the purpose and the meaning?....
http://johannesen.ca/2017/11/explor...ngagement-pediatric-neurodisability-research/
"So my talk today is not about the importance of patient engagement in research. Rather, I’m interested in a broader, more critical discussion.
In addition to asking ‘how do we do it better’, I propose we also need to ask ‘why do we do it at all’ – which is to say, what is the purpose and the meaning?....
http://johannesen.ca/2017/11/explor...ngagement-pediatric-neurodisability-research/