Ozempic, tirzepatide and other GLP-1RAs - impact on ME/CFS

[Venicequeenf]

I am trialling Mounjaro since around 6 or 7 weeks. BMI now 19.5. since beginning lost around 2-3 kg (the LDA weight gain). Will update in a few weeks.

 

[Jaybee00]

Why are you taking it if your BMI is 19???

 

[Venicequeenf]

Why are you taking it if your BMI is 19???

I try it for ME. It is supposed to lower inflammation and is being studied for condition like ours. I experiment a lot, yes - my condition is dire and I need anything which could make me even 10% better. I am not sensitive to medication - never have side effects, but also rarely effects.

Of course I take it low dose (am titrating up to 2.5 mg from 1 mg)

 

[Trish]

I am trialling Mounjaro since around 6 or 7 weeks. BMI now 19.5. since beginning lost around 2-3 kg (the LDA weight gain). Will update in a few weeks.

That weight loss is concerning for someone with a low BMI. I hope your doctor is keeping a close eye on your weight and giving you sensible advice.

 

[Sid]

I’ve been on tirzepatide for a few months. 30 lbs lost. Zero effect on ME/CFS symptoms, as expected. Millions of people are on these drugs. If they cured our condition, we’d know about it.

 

[Binkie4]

I have been on mounjaro for 16 months. Weight loss 21% of body weight. I have lipolymphadema so this is considered " have done very well " according to lymphology Consultant because lipoedema fat doesn't respond to GLP1s.

No effect at all on ME symptoms..