Oslo Chronic Fatigue Network

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Sly Saint, Sep 8, 2024.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Their website:
    https://www.oslonetwork.no/about-us
     
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  2. Nightsong

    Nightsong Senior Member (Voting Rights)

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    What's alternative about it? It's been the predominant paradigm in official guidance and in the medical literature until very recently. Most governments' guidelines have until recently been oriented towards their viewpoints. Oodles of research funding has gone their way.
    Wonder why no-one thought of that before. A singularly alternative view, isn't it?
    This is actually quite puzzling.
    Time to consider? Again, theirs has been the predominant paradigm until very recently. In the UK all official pre-2021 guidance - CG53, the RCP report from the 1990s - took the BPS view. Only recently has that begun to change.
    This represents a fundamental misunderstanding of what is and what is not ethical. It is not remotely ethical to give a patient unevidenced explanations for their symptoms. Often their approach involves some level of implicit or explicit coercion (ranging from encouraging stimulus-challenge in a patient reporting adverse effects all the way through to sectioning & deliberately isolating patients). Some of their practices raise the most serious of ethical questions that there are in medicine.
    And there are plenty of books, online stories, and more recently systematic promotion by researchers of precisely these narratives on sites like RN. In my opinion a further ethical problem arises when researchers deliberately promote stories claiming benefit and deliberately ignore stories of harm.
     
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  3. Andy

    Andy Committee Member

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  4. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Well, at least they give the strong impression that nobody ever believed in what they have been saying for 50 years (their first paper is dated 1977). The PACE trial never existed. Odd to pretend you never existed.
     
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  5. Denise

    Denise Senior Member (Voting Rights)

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  6. bobbler

    bobbler Senior Member (Voting Rights)

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    A lesson in sophism isn't it. Almost like a philosophy exam where you have to learn the different aspects of fallacial argument and reply like a reading comprehension to where they are.

    Thanks for going through it so well.

    Apalling that we have to do it.

    I'm aware of free speech but this should come with a label of the 'ism' and propaganda that it is as a group, it's one thing holding a position as a theoretical academic and doing this sort of thing on the side (where it's a spectacle to watch a debate of) but I'm starting to think there should be questions about responsibility in public life that I think @NelliePledge mentioned on another thread, and safeguarding/spokesperson type issues if there are positions which directly great a power differential and a responsibility over others etc. - in a lot of people/sectors/situations these two things are normally separated.
     
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  7. bobbler

    bobbler Senior Member (Voting Rights)

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    Yes this is the perpetrators of something that did and continues to do harm directly via their treatments and directly via their spreading of misinformation believing that they can avoid apologising or acknowledging.

    If they actually were responsible souls bothered about either the future of psychology or the patients having access to any of that side if and when it is relevant to some then they would have understood that their stepping aside and mea culpa was vital so that they ceased to tar those profession(s)/broader area.

    I'm pretty sure that it would be a first if these individuals adopted an ethical approach or evidence that was sound and not based on bias (so it is informed consent rather than misled consent), so it is very naughty using the non-sequitur of 'it is crucial that' to infer they are concerned about it - past and future?

    The irony of wording things to mislead even in the line about ethics. Says it all as a 'when people show you who they are' etc to me

    I think once you've taken advantage of access to something that might influence someone's mind, and safety/life, and got it so wrong it probably potentially harmed - and carried it on for so many years without checking for harms - then the only honourable thing to do is realise you can't be near those people, nevermind have power over how they are perceived.

    It is indeed coercion and all of those other undesirable and problematic inappropriate things that shouldn't be involved in a position of responsibility. Add a heighten aspect to it where 'mind' is involved.
     
    Last edited: Sep 9, 2024
  8. Obermann

    Obermann Senior Member (Voting Rights)

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    Is this some kind of sick joke? “Defend discredited strategies for recovery to the last drop of blood” would be more accurate.

    upload_2024-9-9_9-32-44.png
     
  9. rvallee

    rvallee Senior Member (Voting Rights)

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    This is pretty much like a dictator in power for decades running an election attacking the current government, which they've been controlling for decades, and running as a new bold reform candidate while at the same time boasting about their numerous accomplishments. Which is a thing that happens in dysfunctional nations. It's basically a test of loyalty that everyone sees through but you have to play pretend.

    The most impressive thing remains that almost no one in medicine calls it out, instead encourage and promote it. These people are so completely full of shit and yet everyone pretends like they're serious people. You could show this to most MDs and they'd see nothing wrong with it, even if you explain it step-by-step, even if they'd readily admit that this has been the paradigm for several decades. It's completely baffling. Speculative fantasy-based health care. Absurd.

    This, especially:
    They can? Such as? Because it's been out there for years. And no such insight has been put forward. It has been heard. While the vast majority of voices have been silenced. Including in the research of the people involved in this, which features it. It's all complete fiction. A "imagine a world where" that happens to describe the current reality in all its miserable failure, but none of it matters.

    Frankly this needs to be taken into account on what mental illness is. It's fully delusional.
     

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