Ophthalmic correlates of Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS)

Source: University of Leicester

Date: September 2017. Online: February 15, 2018

URL: https://lra.le.ac.uk/handle/2381/41228

https://lra.le.ac.uk/bitstream/2381/41228/1/2018AhmedNSMphil.pdf

Ophthalmic correlates of Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS)
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Nadia Sultana Ahmed
- College of Life Sciences, Dept. of Neuroscience, Psychology and Behaviour, University of Leicester

Abstract

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating disorder. With the exception of disabling fatigue, there are few definitive clinical features of the condition. As a consequence, patients often have difficulty gaining an appropriate diagnosis. As such, identifying distinct clinical features of ME/CFS is an important issue. One under researched area of ME/CFSassociated symptoms concerns problems related to vision. People with ME/CFS consistently report a range of symptoms related to the quality of their vision including pain in the eyes, hypersensitivity to light, difficulty focusing on images, slow eye movements, and difficulty tracking object movement. However, there has been little attempt to verify patients' self-reports using objective methods.

More at link

 

It seems that Philosophy covers more than I would have thought.

There was also this, https://www.s4me.info/threads/restricted-spatial-windows-of-visibility-in-me.2006/, but I think it's different?

 

Looks like there's some good stuff in here. My brain is too tired to do a proper hunt today, but have any of these findings been published in scientific journals?

(I can't remember whether findings that arise as part of an MPhil/PhD thesis need to be published in the thesis exclusively, or first - I seem to recall my flatmate having papers published while he was working towards his PhD but might be misremembering...)


ETA: I think @Andy answered my question while I was still typing it, in the post directly above...

 

Very much enjoying skimming this. I've been unable to find an opthamologist in-network with any ME/CFS experience. All eye tests so far have been normal.

But this document might help validate my symptoms. Or at least better describe them.

Looking through the eye symptoms, I've had many for significantly longer than what I would describe as my actual ME/CFS onset.

Edit: The section on Rituximab does need to be updated to reflect the Phase III results (null).

 

Yes - it is the same person, and is about the same thing, but is a different paper. Should they be merged?

 

I wouldn't have thought so. As you say same person, same area of research but different thing being measured, so separate thread seems to make sense.

 

interesting to see allergic conjunctivitis there. did they report incidence? although mine was severe, it was one of my earliest symptoms as a young child. it is not usually mentioned in the community, so i presumed that it was not common. wonder if it could be an mcas or mold link, or an allergy link.