Opening of the "Charité Fatigue Centre"

[Andy]

Facebook translate has supplied the English text

On March 20., the Charité-Universitätsmedizin Berlin opened the first fatigue centrum in Germany. At the opening ceremony, next to representatives of the professionals, the press and the press conference, the chairpersons of the DG Daniel Hattesohl and Sebastian Kitty were also part of the

The aim of the new ismal is to explore the causes of fatigue in different diseases, to develop diagnostic markers and to carry out diagnostic tests in the interdisciplinary composite. In addition, the centrum by will create the interior design and information material.

The Centrum and the diseases of multiple sclerosis, cancer and me / CFS were presented in several lectures. Prof. Scheibenbogen spoke about #mecfs, described it as an independent, complex disease and presented its previous research. Sebastian Kitty, chairman of the DG, gave a lecture with the title: "# millions missing: the situation of the me / CFS-sick ". at the end of the event, the documentary Unrest was listed.

Me / CFS AFFECTED (currently limited to those from the room Berlin / Brandenburg) will continue to be supplied in The Immunodeficiency Ambulance of the charité. The new centrum is first focused on research. According to the DG, the interdisciplinary association will create more attention and recognition for me / CFS and benefit from education, doctors training and research to all me / CFS-Patient:innen

You can find the whole program here: https://www.charite.de/fileadmin/user_upload/portal/charite/presse/pressemitteilungen/2019/Fly_Fatigue_2019_03_20.pdf

https://www.facebook.com/dg.mecfs/posts/533015563773180

 

[Rick Sanchez]

To the people living in Germany, what is your take on Deutsche Gesellschaft für ME/CFS?

From an outside perspective it looks like they have been doing a very good job, but would love to hear how people in Germany view them!

 

[Trish]

Looks like a good development. What does ismal mean?

 

[Jonathan Edwards]

Looks like a good development. What does ismal mean?

Looking at Google, nothing much, except that it is a place on the Danube.

 

[Hoopoe]

Looks like a good development. What does ismal mean?

It's a translation error. It says "aim of the new centre is ..." in the original.

 

[Andy]

It's a translation error. It says "aim of the new centre is ..." in the original.

I agree, have edited the title to remove "ismal" and replace with "centre".

 

[Hoopoe]

This will be a centre that will research fatigue in various illnesses, find biomarkers, carry out treatment studies, and produce educational material. The document names cancer, ME, and neurological disease.

 

[Inara]

I am a bit divided on this.

I think it's great there is now a center that will house ME/CFS. It's unique in Germany, and it's the right step. They offer a 2-day-CPET following the protocols from publications. It subsumes cancer and MS related fatigue as well, but also a psychosomatic clinic.

The connection of CFS with "fatigue" isn't very advantageous in my view.

Also, the CFS part of the center is still closed to everyone outside of Berlin/Brandenburg, so most Germans cannot go there. Indeed, my impression is the knowledge about ME in Berlin is best compared to the rest of Germany, and the care for people with ME is also much better than elsewhere (but still not really good). It also seems people with ME have a slightly better access to disability benefits due to better knowledge of doctors about ME.

The DG for ME/CFS is maybe the best alternative in Germany right now. They supply great information about ME, also for doctors, with a focus on research. They do their best, but often seem overloaded.

So I'd say it's a good development, but the situation in Germany is still a disaster.