Occupy M.E. blogpost: Doing Patient Engagement

[Sasha]

One of my passions is engaging people with ME in research, and especially as more than just subjects of the research. That’s why I co-authored a report on best practices in patient engagement. As the NIH-funded Collaborative Research Centers kick things off, they will be revving up their own engagement with patient partners. To that end, I offer these examples of how not to do patient engagement (via Twitter)....

Read the whole thing at: http://www.occupycfs.com/

It's actually pretty funny! Well worth a read.