News from Scandinavia

There are others better equipped to comment on the situation in Sweden - but this seemes to perhaps be an important judgement? maybe setting precedence for ME-patients....? :) or is taking it to court just "standard protocol"? :/


Despite the medical certificate of major difficulties with the motorist in his right hand, headache, fatigue and difficulty to go, he was denied sickness benefit. Not even the fact that he collapsed at a meeting where the Social Insurance Fund participated helped. However, the cashier did not consider that he was entitled to sickness benefit.

Now, Sture Eklund wins in the Administrative Court, which grants him sickness benefit from February 20, 2017 through January 31, 2018. In the judgment, the Court finds that the Social Insurance Fund can not only emphasize objective investigation findings, but the entire investigation must be taken into consideration in the assessment.
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inox said:
There are others better equipped to comment on the situation in Sweden - but this seemes to perhaps be an important judgement? maybe setting precedence for ME-patients....? :) or is taking it to court just "standard protocol"? :/
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There have been so many similar judgements over the years, also in the higher courts, but sadly they don't seem to make a difference :( It wouldn't surprise me at all if Sture will have to go to court again, for the next period of time (after Jan 31, 2018), and the next, and the next...

It's immensely exhausting, frustrating and demoralising if your doctor only writes the papers for 3 months at a time, as many do... sometimes having to appeal each and every one separately :(
 
mango said:
There have been so many similar judgements over the years, also in the higher courts, but sadly they don't seem to make a difference :( It wouldn't surprise me at all if Sture will have to go to court again, for the next period of time (after Jan 31, 2018), and the next, and the next...

It's immensely exhausting, frustrating and demoralising if your doctor only writes the papers for 3 months at a time, as many do... sometimes having to appeal each and every one separately :(
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Oh, I'm so sorry, that's terrible for all sick people, so, so hard for people with ME :(
 
mango said:
There's an article in Dagens Medicin (Sweden) today, about the Cochrane issue it seems, but it's paywalled. (They suddenly started paywalling yesterday,... including some articles that were previously free to read.) Anyone here have access?

https://www.dagensmedicin.se/artiklar/2018/10/25/indragen-me-oversikt-ses-som-lugnet-fore-stormen/
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You can subscribe for free for one month to the online version (I just did)

This is an article about the Cochrane withdrawal with an interview of ME doctor Björn Bragée. He is not surprised that the review gets withdrawn.

He says this patient cooperative is not like any patient cooperative that quietly observes research and such. These people are very well read and knowledgable. And they mobilise, rightly so, together with the researchers that have other views.

He says this is sensational, but has happened before and mentions that the Lancet withdrew an article about ME and CBT, the so-called PACE trial ( :confused: )

He says the professionalism he meets on a daily basis from his patients has made him humble. He says those days are over when research could be done without the patients having any opinions and that this is the first patient group that shows this.

This will eventually happen within all fields. This is just a ripple on the water until the tsunami arrives. He criticises the attitude from colleagues that patients shouldn't interfere with science. If you publish something, you have to accept being asked questions.
 
@Kalliope Thank you so much! :hug:

Dr Bragée is a very controversial character, used to be a tv celebrity, he's new to ME/CFS, likes to promote bps while at the same time claiming that his approach to ME is biomed, and it seems to me like he's still not up to speed knowledgewise -- particularly when it comes to the history and politics of ME. He's a loose cannon in my opinion...

Shame he couldn't get the facts about PACE straight :(
 
In Memoriam: Arvid Carlsson—Pioneering Researcher and Nobel Laureate
"was instrumental in developing biological psychiatry in Denmark"

"as late as 30 June 2018, the day after he died, a paper was published in Acta Neuropsychiatrica on which he was the senior author: “A randomised controlled trial of the monoaminergic stabiliser (-)-OSU6162 in treatment of myalgic encephalomyelitis/chronic fatigue syndrome”."

https://www.nature.com/articles/s41386-018-0244-0

https://www.ncbi.nlm.nih.gov/pubmed/29212562
(didn't work)
 
Stora Sköndal ME/CFS Center in Stockholm, Sweden:
Google Translate said:
Training day about ME
November 16, ME/CFS Center at Stora Sköndal organizes a full day of lectures on ME/CFS. We talk about the background of the disease, how to diagnose and the treatment we offer here at Stora Sköndal. The education is aimed at primary care staff. Click here to see a more detailed program. If you want to register to take part, please email memottagningen (at) storaskondal.se.
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http://www.storaskondal.se/vara-verksamheter/neurologisk_rehabilitering/mecfs-mottagning/

 
Paywalled article in Aftonbladet, Sweden:
Google Translate said:
The chronic disease that does not go away with rest
The chronic disease affects thousands every year. But access to care is limited and the queue is long. Pernilla Zethraeus, 56, was diagnosed the day she was appointed as a Member of Parliament.

✓ At least 10,000 Swedes have the disease
✓ Pernilla became ill, lean and had difficulty speaking
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https://www.aftonbladet.se/halsa/a/Kv4jVy/kroniska-sjukdomen-som-inte-gar-att-vila-bort/promo
 
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