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News from Scandinavia

Discussion in 'General ME/CFS News' started by Kalliope, Nov 2, 2017.

  1. mango

    mango Senior Member (Voting Rights)

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    Blog article by #MEvårdsaknas, commenting on the false information that was published recently.

    Sant eller falskt - glädjebesked eller fake news? [True or false - wonderful announcement or fake news?]
    https://mevardsaknas.wordpress.com/2019/11/10/sant-eller-falskt-gladjebesked-eller-fake-news/
    Mistakes like these really do matter. If the info had been true, it could have been potentially life-changing news for lots and lots of people. So many overjoyed pwME commented on the original article when it first was shared in Facebook groups etc, crying tears of relief and gratitude, expressing excitement and a renewed sense of hope etc. And then the article was corrected,... and it was heartbreaking...

    News travel fast too. For example, ME Association Denmark posted a link to the original article on their Facebook page, commenting [auto-translated] "In Sweden one ME-specialist center opens after another. Denmark has none, and ME patients are without care options for many years now." Who will tell all their followers that the news was false? (And what else have they been reading that has made them mistakely believe there are many new ME centers in Sweden..?)

    I agree with #MEvårdsaknas's request:
     
  2. mango

    mango Senior Member (Voting Rights)

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    TRIGGER WARNING: Suicide, death.

    Another article with comments on the ongoing trial (a man in Sweden charged with manslaughter for helping his severely ill wife end her own life).

    The former chairperson of the local chapter of the patient organisation RME is sharing her personal views on assisted dying and this case in particular.

    Gertie Gladnikoff har själv ME – följer dråprättegången
    https://etidning.allehanda.se/369/T...ladnikoff-har-sjalv-ME-foljer-draprattegangen

    (RME has very strict rules about active members publicly expressing personal opinions on certain topics, so I'm very surprised to see her being this outspoken... I can't help wondering whether RME has "signed off" on this or not...)
     
    Last edited: Nov 18, 2019
    MEMarge, andypants, Anna H and 3 others like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    This is just so utterly weird. Thanks for keeping us updated, @mango I wonder how this will develop further..
     
    MEMarge, ladycatlover, Anna H and 3 others like this.
  4. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    You know there seems to be a window for some therapy here. I find it disturbing when there are people out there who get excited about the idea of punishing people whose crime is to be in extreme pain and then take steps to alleviate it.

    And they are often loud (and IMO irrational) voices for condemning those that act and stir up others to condemn also. Could this be what mass hysteria looks like?
     
    MEMarge likes this.
  5. mango

    mango Senior Member (Voting Rights)

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    Mottagning för ME-patienter dröjer – politiker i Västerbotten kritisk
    https://www.svt.se/nyheter/lokalt/v...drojer-regionpolitiker-i-vasterbotten-kritisk

     
    Kalliope, Andy, Anna H and 3 others like this.
  6. mango

    mango Senior Member (Voting Rights)

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    Press release by #MEvårdsaknas:

    ME-sjuka i protest mot obefintlig vård! [People with ME in protest of non-existent care!]
    https://www.mynewsdesk.com/se/numme...-sjuka-i-protest-mot-obefintlig-vaard-2942429

    Petition:
    https://www.mittskifte.org/petition...isk-encefalomyelit-me-varda-vard-mevardsaknas

     
  7. mango

    mango Senior Member (Voting Rights)

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    Today was the last day of the Nordingrå trial. The sentence is expected to be announced on Monday November 18.

    Most of the news articles are behind paywalls.

    According to one article, the main reason the procecutor gives for demanding a 2 year prison sentence for manslaughter is an earlier judicial decision from the 1970s(!) when a woman was sentenced to one year in prison for having helped a man with MS end his own life.
    https://www.svt.se/nyheter/lokalt/vasternorrland/aklagaren-yrkar-pa-tva-ar-fangelse-for-maken
    https://www.svt.se/nyheter/lokalt/v...hartighetsdrap-det-har-varit-en-jattetuff-tid

    I haven't been able to follow the media reports myself, but one thing I find "interesting" is something that several people have mentioned on social media: apparently the procecutor focused her closing argument very heavily on whether the woman had ME or not. A lot of the discussions during the trial also seem to have been focused on the diagnosis itself. Why focus on the diagnosis instead of the actual, immense, long-term and documented suffering including symptoms and functional impairment; exacerbated and maintained by lack of medical care, lack of effective treatments, lack of practical and social support etc?

    I've wondered the same thing many times about the court cases where people with ME are appealing against the Social Insurance Agency's decisions to deny or cancel people's sickness payments. Their own rules say (paraphrased) that it doesn't matter what kind of injury or illness you are suffering from, the only thing that matters is your ability to work. So why does the diagnosis itself suddenly become so important, just because the person happens to have ME? It doesn't make any sense. Stigma, prejudice and ignorance continue to cause harm :cry:

    I really appreciated what Sten Helmfrid wrote on Twitter the other day:
     
  8. rvallee

    rvallee Senior Member (Voting Rights)

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    Time is a damn circle because some people insist at beating it into that shape.

    You'd think the smart people whose job it is to help other people would be careful about not repeating the exact same mistakes in the exact same way and yet here we are, with the same consequences from those past mistakes and always the same response from those responsible that they disagree that it's similar because it doesn't feel similar.

    What a freaking embarrassment this all is. Medicine seems to work the same as politics, technology changes around it and makes it seem like it progresses but deep down, where technology fails, absolutely nothing has changed in millennia. Human nature being what it is, scared of the unknown and always willing to invent nonsense about what the shadows hold.
     
    Michelle likes this.
  9. mango

    mango Senior Member (Voting Rights)

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    #MEvårdsaknas handed over the petition to the parliamentary committee on health and welfare today. More than 9000 signatures! :balloons::party::thumbup:



     
  10. mango

    mango Senior Member (Voting Rights)

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    10 044 now! Phenomenal! :party::balloons::thumbup:

    The petition will be presented to regional healthcare representatives in various parts of the country as well :) Fingers crossed for some good media coverage.

    Blog article written by Skiftet, the petition platform currently used by #MEvårdsaknas

    https://skiftet.org/2019/11/politikerna-stod-i-ko/
     
    Last edited: Nov 18, 2019
  11. mango

    mango Senior Member (Voting Rights)

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    SVT: Ingen ME-vård norr om Stockholm – trots löfte från Region Västerbotten
    https://www.svt.se/nyheter/lokalt/v...tockholm-trots-lofte-fran-region-vasterbotten

    ETA:
     
    Last edited: Nov 18, 2019
    rvallee, Anna H, Esther12 and 4 others like this.
  12. mango

    mango Senior Member (Voting Rights)

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    He's been sentenced to 1.5 years in prison for manslaughter :cry: They will appeal.

    https://www.svd.se/dom-meddelas-i-barmhartighetsdrap

    (Had a quick look but I wasn't able to find an article that isn't behind a paywall, sorry.)
     
    ladycatlover, Hutan, Michelle and 4 others like this.
  13. Kalliope

    Kalliope Senior Member (Voting Rights)

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    There was one in Norwegian media:
    VG: Richard (63) dømt for drap - ga ME-syk kone morfindose
    google translation: Richard (63) convicted of murder - gave ME-sick wife morphine dose

    Lundgren is convicted of murder, but to a penalty shorter than the minimum time because the court believes there are mitigating circumstances.
    - It clearly considers that his actions alone were caused by thoughtfulness and love for (spouse's name), the court writes.
     
  14. rvallee

    rvallee Senior Member (Voting Rights)

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    Very symbolic that the precedent for this judgment is from nearly the exact same mistake and for identical reasons. It's grotesque that this is almost entirely the fault of medical professionals and institutions. The despair that leads to situations like this is almost entirely the product of choices made to reject reality and substitute it with nonsense.

    It doesn't have to be this way, yet some people are aggressively motivated to keep the failure going. Blood on all their hands. Lives wrecked whole on a mediocre belief system. Meanwhile idiots who promote shouting STOP at your symptoms are in complete control. And all because the sick have no rights, only privileges that can be waived on mere whims and beliefs. What a complete and total mess.
     
    rainy, LadyBirb, MEMarge and 3 others like this.
  15. mango

    mango Senior Member (Voting Rights)

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    This is not about ME, but for those of you who might be interested in the bigger picture and the politics of the healthcare situation in Sweden.

    It's relevant to advocacy work and in order to understand the difference between ME healthcare in a primary care setting vs at the two ME specialist centers in Stockholm (Stora Sköndal ME/CFS-mottagning and Bragée ME-center: private clinics that have contracts with Stockholm County Council, the regional municipal body responsible for the public health system).

    It's a very well-written and informative opinion piece about some of the problems caused by the privatisation of specialist healthcare in Stockholm. (Healthcare in Sweden works differently in different counties, so this is not a nationwide situation.)

    I don't know enough about it to make any informed comments, but I do find it very interesting. Would love to learn more about what's going on behind the scenes, especially in relation to ME specialist care...

    En krigsförklaring mot gemensamt finansierad vård
    https://www.dagensarena.se/opinion/en-krigsforklaring-mot-gemensamt-finansierad-vard/

    Google Translate: A declaration of war against jointly financed healthcare
    https://translate.google.se/transla...igsforklaring-mot-gemensamt-finansierad-vard/
     
    rvallee, Anna H, Sean and 2 others like this.
  16. oldtimer

    oldtimer Senior Member (Voting Rights)

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    This conviction is a travesty. I hope he never doubts he did the right thing.

    It angers me so much that there are so few places we are allowed the right to end our lives the way we choose at a time of our choosing, and without needing to hide it and do it without having friends and family around for support in case they are legally implicated in a crime.

    I wish him courage and hopefully success in his appeal.
     
    ladycatlover, MEMarge, Trish and 3 others like this.
  17. Ravn

    Ravn Senior Member (Voting Rights)

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    For some light relief.
    This turned up on FB today. The Danish ME Society is looking for votes here: https://pfabruglivetfonden.dk/forside/afstemninger/hjertesag/

    The PFA foundation gives some money every year to a handful of good causes (I don't know how much). Public voting influences the decision process.

    You can vote for the Danish ME Society by finding "ME Foreningen" on the alphabetical list and clicking on the heart below the picture and beside the word "stem" (which means 'vote'). It seems to work from outside Denmark; no personal details are requested.
     
    Hutan, andypants, Andy and 2 others like this.
  18. mango

    mango Senior Member (Voting Rights)

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    rvallee, petrichor, Anna H and 2 others like this.
  19. Sean

    Sean Senior Member (Voting Rights)

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    +1

    Euthanasia is not choosing to die. It is choosing how to die, according to your needs and values.
     
  20. mango

    mango Senior Member (Voting Rights)

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