I’m a member. What they neglect to mention is that the journalists faked having ME and getting treatment to gain access to the group and steal information and patients names without consent. Very disturbing. Maybe, but this was not government money or even research money, this was patients own money used to try something that seemed like a promising option. I know I for one do not regret having given it a go. My money, my health, my choice. Obviously in retrospect it didn’t make a difference, but I still don’t think it’s for others to judge my and my family’s decision to try it. Should the clinic have offered rtx before the phase III? Probably not. But I refuse to be looked down on for prioritizing any chance of improvement for myself. I, like all of us, didn’t have more years to wait for my life back if there was a possibility it would work.