Poor Jeff.. must be hard for him.
That was a good thread. And she took the Wise guy to task about his awful article with solid points.Thread
True. I experienced PEM for three years before I heard the term "post-exertional malaise."Zeynep Tufekci said:It makes no sense that many previously very active people suddenly all developed post-exertional malaise, without having ever heard of it.
for me it was nearly 13 years......and I was a member of a main UK ME charity.True. I experienced PEM for three years before I heard the term "post-exertional malaise."
Thread
That's a brilliant thread from Todd Davenport.
Here's a link to the unroll version:
https://threadreaderapp.com/thread/1589443191581052930.html
I've read numerous Twitter threads by journalists and scientists re Jeff Wise's article, and judging from his responses he has indeed retreated into the militant activist trope. Many patients, scientists and journalists have given him links to studies with evidence re CBT/GET having no use in ME and potentially harmful, and to current biomedical research showing all sorts of medical anomalies warranting investigation, but instead of listening he's doubled-down on the BPS stuff. For example:I hope that there are more credible rejoinders like this. Does anyone have a sense of the social media response to Wise’s missive? I’m guessing, based on decades of experience, that he will retreat into the militant activist trope
Obviously, it's 100% intentional. The time to mince words has ended long ago. This negligence will continue until it is made to stop, it will not end on its own. Even with LC too many have staked everything on doing the wrong thing yet again, it's too embarrassing to admit.“While this may not have been intentional, it feeds into the perception among some parts of the health service that long Covid is primarily psychosomatic rather than mental health issues being caused by having an illness that severely impacts everyday life,” said Dr Twycross, who has had long Covid since 2020.
I've read numerous Twitter threads by journalists and scientists re Jeff Wise's article, and judging from his responses he has indeed retreated into the militant activist trope. Many patients, scientists and journalists have given him links to studies with evidence re CBT/GET having no use in ME and potentially harmful, and to current biomedical research showing all sorts of medical anomalies warranting investigation, but instead of listening he's doubled-down on the BPS stuff. For example:
He just sounds so utterly ignorant while also self-righteous and unable to accept he's wrong. It all comes across like someone like the SMC spoonfed him BPS-centric out-of-touch and just plain wrong views. He clearly didn't do his homework in learning about the subject he reported on. Maybe he will finally grow some curiosity and do some reading and educate himself, but it doesn't seem like it.
Are you aware that Jeff Wise wrote a book about the mechanisms of fear in the mind, and how different parts of our brains react? He looked into the neurology and the psychology of fear situation. Not surprising that his views on fear of exercise and PEM are part of his narrative.
He said he spoke to ME/CFS specialists for his article. Who were they? Ashok Gupta? The guy who started the Amygdala Retraining Recovery Programme?
Jeff Wise Book:
Extreme Fear, The Science of Your Mind in Danger.