Netflix "Afflicted" - ME included

JenB said:
But you still need to be able to make sure that everything they say can be cited. If not, you can't include it, no matter how useful the scene may be otherwise.
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That leaves out the bit where they had a doctor say about an alternative therapy that he'd never really looked into it, had no idea what it entailed, but that it was definitely a non-treatment.

Whether or not he was correct in his assessment, his logic was totally unsound.
 
Webdog said:
I agree with you.

That said, this is exactly what is being claimed for those who practice "gratitude". That the mental state of gratitude improves your physical health. This positive psychology concept is now part of mainstream medicine in the US.

Be thankful: Science says gratitude is good for your health
https://www.today.com/health/be-thankful-science-says-gratitude-good-your-health-t58256






Can Gratitude Be Good for Your Heart?
https://greatergood.berkeley.edu/article/item/can_gratitude_be_good_for_your_heart

How Gratitude Changes You and Your Brain
https://greatergood.berkeley.edu/article/item/how_gratitude_changes_you_and_your_brain

Why Gratitude Is Good
https://greatergood.berkeley.edu/article/item/why_gratitude_is_good
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The Healing Power of Gratitude
https://permanente.org/healing-power-gratitude/

Gratitude and Well-Being: How Giving Thanks Can Rev Up Your Health and Happiness
https://share.kaiserpermanente.org/...-thanks-can-rev-up-your-health-and-happiness/
https://wa-health.kaiserpermanente.org/gratitude-benefits/

James Coyne gives the skeptical view:

Did a study show expressing gratitude improves your physical health?
https://www.coyneoftherealm.com/blo...ssing-gratitude-improves-your-physical-health


Links to studies:
The impact of a brief gratitude intervention on subjective well-being, biology and sleep
http://journals.sagepub.com/doi/abs/10.1177/1359105315572455

The Role of Gratitude in Spiritual Well-Being in Asymptomatic Heart Failure Patients
https://www.apa.org/pubs/journals/releases/scp-0000050.pdf
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Even if gratitude has benefits (I have no idea whether it does or not), its benefits may not be from some magical force but perhaps be mediated by people being more inclined to engage in some healthier behaviors.

Or as been suggested, the correlation may not be causative. An example I thought of in general on this is owning an expensive car may be associated with better health. However that doesn’t mean that there is a health benefit to be derived from purchasing such a car.
 
Lily Valley said:
And Dr Gordon works with integrative and functional therapies. From his website:

”Some patients may immediately benefit from intravenous therapies. Others may respond initially to energetic modalities, such as Frequency Specific Microcurrent or Photon Stimulation. Some patients may require antibiotics while, for others, herbal or homeopathic remedies may be more suitable. Everyone has different supplementation requirements, and needs to follow different detoxification strategies.”


“For Dr. Gordon, however, knowledge and understanding does not come primarily from research, but from interaction and direct experience with his patients. He is first and foremost a private practice physician. His deep respect for the biochemical individuality of his patients is at the heart of his approach.”
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Just wondering, is that Dr. Eric Gordon of Santa Rosa, Calif.? If so, his wonderful IV therapy (thanks to a reused IV needle) gave a CFS suffering friend Hep C. about 10 yrs ago. A cash upfront business. Buyer beware. So much for the risk/benefit of these unproven therapies. I will spare myself the anguish of the series.
 
shak8 said:
Just wondering, is that Dr. Eric Gordon of Santa Rosa, Calif.? If so, his wonderful IV therapy (thanks to a reused IV needle) gave a CFS suffering friend Hep C. about 10 yrs ago. A cash upfront business. Buyer beware. So much for the risk/benefit of these unproven therapies. I will spare myself the anguish of the series.
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Oh, so sorry to hear that This is his website:
https://www.gordonmedical.com/team/eric-gordon-m-d/
 
JaimeS said:
Not that I know of. We've discussed at #MEAction and my review of episode 1 is going out soonish. We have a few suggestions for mini advocacy actions attached, but we are in process with something more substantial as well. More as it shakes out, everyone.
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There are potential downsides to linking ME Action to advocacy efforts around Afflicted. This could be a case where it's better to have individuals raising concerns rather than having an ME organisation getting involved? I don't know.
 
Esther12 said:
There are potential downsides to linking ME Action to advocacy efforts around Afflicted. This could be a case where it's better to have individuals raising concerns rather than having an ME organisation getting involved? I don't know.
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I see where you're coming from! Sorry, just not smart to say more if it ends up changing in significant ways. Then ppl say we said X but did Y.
 
I just caught this thread, I was aware of Afflicted but it was on my to watch list. My support worker commented on it, and it sent alarm bells going for me. I will comment further when I have seen it, but it sounds like vague unscientific commentary with bias toward psychosomatic claims.
 
JenB said:
I wish doctors understood logic, probability, statistics and causal inference. I wish the public (and TV documentary producers) didn't mistake doctors for scientists.
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I second that. Non-scientists get a lot wrong, heck even many scientists get things wrong. Most patients can only cite what their doctors have told them, and much of that is wrong much of the time. Many doctors are so far out of touch with science that they do not realise the first useful test, chronologically, seems to be the tilt table test, from 1940 or prior. Some might dismiss this, but I went into cardiac arrest during mine and had to be revived. That is not a minor issue.

After that are many more tests, 1946, 1947, 1949, and 1954. I stopped tracking them from that point. There is massive confusion between there not being a diagnostic test, which is fair, and there not being tests that give evidence of pathophysiology in specific individuals.
 
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