My ME story on BBC Radio Jersey

[chicaguapa]

I've listened to the programme now and Gary got a lot of information out there. Well done!

I also like the phone battery analogy and use it often. I take it a step further by explaining that you have to carefully choose which apps you are going to use on the phone so the battery lasts all day; some have to be uninstalled as they drain it, whereas others use very little power. And then just when you think you've cracked it, one of them decides to automatically install an update that you didn't plan for!

Will check out the zonked club now.

 

[MeSci]

On the last caller to the phone in, I'd say we really need to be out and proud with our diagnosis. ME is a disease not a shameful secret. We need to hold our heads up high (or at least prop them up on high pillows). I've known some people be more open about their sexually transmitted diseases than many PwME are willing to talk about their diagnosis.
This needs to change and it's a change that starts with us - because what we project to the world about ourselves and our illness informs the opinions of others.
Eradicating the stigma of ME is within our power as a community.

I think I've started to be more outspoken about having ME (am so dopy that I'm not sure but I think so!). Most people seem to know what I'm talking about. I try to find out if they do before I call it by its name.