MitOX 2019, 30th April, Oxford, UK. [A one day meeting for researchers with an interest in mitochondria]

Still space at this event if anybody wants to go along.

The day's programme has been finalised, screenshots only as the file is too large.



So no talks actually on ME, although a couple of those in the last session look generally relevant/interesting.

Of the poster presentations, four look of interest.

 

@Jonathan Edwards how much evidence is needed to make a good argument that GET is or may be harmful?

Based on what I know the paper by Karl Morten will show that after a course of GET, metabolites associated with energy production decline. The last time they spoke about this there was no control group if I remember right. Still it seems to strongly suggest that GET may be making an existing problem worse rather than better. And claims that GET can cure patients would look ridiculous next to such data.

This is relevant for the NICE revision of the ME/CFS guidelines. @adambeyoncelowe @Keela Too

 

We are definitely past the point after which legal action will have standing. NICE should probably pay attention. There will be a cost to propping up this ideological nonsense, literally.

 

Maybe a legal expert should speak to the NICE panel about the implications?

 

This was today. Any news?

 

Not that I'm aware of. I believe the plan is to still supply a summary at some point, and the collaborators meeting tomorrow might contain things that I'm allowed to share.

 

Any updates from the meeting, @Andy?

 

None that I can reveal at the moment, I'm working on a report of the meeting but as there was a lot of unpublished work discussed I need to ensure I don't reveal anything that I shouldn't.

What I can say was that I welcomed by all there, I genuinely felt part of the meeting and that on the occasions that I offered an opinion it was taken seriously - a huge difference to how patients have been treated by certain other researchers.

 

That must have been so exciting . Thank you for representing the community! Also, engaging with researchers is really motivating for them too.

 

Thanks Andy.

We were away celebrating my daughter's birthday o/n in Brighton, so could not attend the event.

Another time I may well be able to go as Oxford is quite drivable for me.
However looking at the program, I'm not sure my last century Physiology and Biochemistry degree would have been enough for me to understand much!

 

Thanks for the update! It’s really encouraging to hear how the group responded to you, and that they were discussing os much unpublished work! Always exciting to know that there’s stuff in the pipeline.

Looking forward to reading your report!

 

Can't wait either. Thank you!

 

A new thread, https://www.s4me.info/threads/patie...l-mortens-collaborative-group-oxford-uk.9402/, has been started to host my reports back from the collaborators meeting (which are separate to the MitOX meeting).