MitOX 2019, 30th April, Oxford, UK. [A one day meeting for researchers with an interest in mitochondria]

Prof Karl Morten has kindly pointed this event out to me as something that might be of interest to forum members. Apparently there is space for up to 10 non-researchers available.

Not much, if anything, directly related to ME is currentl anticipated but the general subject matter might be of enough interest to some.

For full details see, https://www.wrh.ox.ac.uk/news/mitox-2019-30th-april

 

Prof Morten has asked me to ask, if anybody is intending to go to this event, please can they contact him first to ensure there is still space available.
His email address is (click button to reveal)

Spoiler: Prof Morten email

karl.morten@wrh.ox.ac.uk

 

Very kind of him to point out this opportunity and to help patients make sure there are still spaces. Very thoughtful!

 

Bump, still spaces left if people are interested and can get there.

 

These talks sound interesting:

Carl Fratter “FBXL4 related mitochondrial disease is associated with pyruvate dehydrogenase deficiency” (Oxford).

Yaomeng Lui “Exercise and exosomes” (Oxford). (Maybe they misspelled her last name and this is her, as she gave the same talk here).

 

Karl has told me that a new, so far unpublished, paper from him and his collaborators, The effect of GET on metabolomics in CFS, will feature at this event. I've seen the abstract and I believe this will be a useful study for us once it comes out.

 

They talked about this in the past but did not have a proper control group if I remember right. Do they have a control group now?

Although, even without a proper control group if there's no improvement in the metabolic alterations after GET the paper is still useful. At least it suggests the strong possibility that GET has no effect.

 

All I can tell you is that there is a control group, no further details are given in the abstract.

 

I'd love to go, I can probably get to Oxford under my own steam, at least there is a chance of it happening.

What I can't do is sit for hours in a lecture hall or similar. I also don't have the cognition to understand/follow...well probably any of it.

Then there is the hotel that would be needed, both before and afterwards. Oxford is only an hour or 2 by coach from my home but sitting in a coach to get there, finding the place, sitting for hours, then sitting on a coach to get back home - on the same day.

So despite the fact that I'd like to go and am interested, it's a non starter.

 

Yeah, I know what you mean. I'd have liked to go but I've been invited along to something else the following day, and while I'm doing pretty well after my hospital trips, I don't want to risk two 'events' in two days.

 

I'd like to go, but I'm not sure I could manage the journey. Will there be videos or maybe livesteams?

 

I don't believe so.

 

It would be great to see the paper, regardless, for NICE purposes.

 

@Andy would you be able to make a couple of suggestions to Karl?

1 is it possible to film the event? More people will be able to see the talks.

2 is it possible for Karl (or someone from his lab) to write an update on his work for S4ME?

Thanks

Estherbot

 

Have I remembered correctly that this work has been financed by MEA? Will Charles Shepherd be going and could he produce a report for us, screen shots of slides etc?

Even if someone can’t do whole day, it would be good to have someone there for Dr Morten’s presentation.

 

1. I'll ask if it's possible. I get the impression that it's a relatively informal event, so they may lack the resources to do this.

2. I have been invited along to Karl's next collaborators meeting as a patient rep (not in an offical S4ME capacity) at the start of May. One of my to-do's was to explore this possibility.

 

Any word on the large-ish MRC grant he's applied for?

 

Not yet.

 

Sorry, the response is that due to unpublished work being presented this isn't possible. However, a summary is planned to be distributed afterwards.