Miranda Hart - British comedian

Trish said:
The writer of the article completely misses the point that there is no evidence to support brain rewiring as a treatment for ME/CFS, and she doesn't mention harm suffered by many from the likes of LP which is based on the same ideas. It is pseudoscience, and should be called out as that.

I wish Miranda well, but I don't think pwME should be criticised by the author of this article on such weak grounds, bringing in other nonsense related to FND and pain management is irrelevant.
Click to expand...

Well it is relevant if your aim is to tell your audience that ME is CF and CF is FND.
 
Ash said:
Unfortunate.

Who’s the author CW?

If anyone is clever and energy filled enough I wouldn’t mind a non inews link?
Click to expand...

i News says of ClareWilson :

Clare Wilson is science writer at the i paper. She was previously a reporter for New Scientist, specialising in medicine and life sciences. She has won awards from the Medical Journalists’ Association and the Guild of Health Writers, and received the 2023 Harding Prize for Trustworthy Communication.
Click to expand...

I gives her Twitter handle @clarewilsonmed

The New Scientist says of her:

Clare Wilson is a health journalist focused on medicine, health policy, neuroscience, archaeology and the life sciences. She previously edited medical features for New Scientist. Before that, she was a reporter for Hospital Doctor, a weekly magazine for doctors, and for Scrip, a newsletter for the pharmaceutical industry.

Clare writes New Scientist’s weekly health newsletter, which goes out on Saturdays, and is an occasional guest on BBC World Service's health magazine programme. She has won awards from the Medical Journalists’ Association and the Guild of Health Writers. She has a BSc in cell biology from the University of Manchester.
Click to expand...
 
Eleanor said:
Wonder if that's the same Clare Wilson. https://www.newscientist.com/article/mg20126997-000-mind-over-body/
Click to expand...

This article could be a puff piece for Simon Wessely:

Can people think themselves sick? This is what psychiatrist Simon Wessely explores. His research into the causes of conditions like chronic fatigue syndrome and Gulf war syndrome has led to hate mail, yet far from dismissing these illnesses as imaginary, Wessely has spent his career developing treatments for them. Clare Wilson asks what it’s like to be disliked by people you’re trying to help
Click to expand...

But the rest is behind a paywall.

However it seems very SMC in its tone.

[added - Clare Wilson has also written an article supportive of the idea of giving the unemployed weight loss injections - https://inews.co.uk/news/weightloss-jabs-jobless-back-work-3324712 ]
 
Last edited:
CS has posted the Clare Wilson article on the MEA FB page, without any further comment. I saw it early in the morning, so just skimmed through the comments from the community but a lot of them agreed with the article and were supportive of Miranda Hart and her book. (Eg I agree, it is Miranda's own story, she has a right to tell her own story / every little glimpse of hope of improvement is important / the book raises awareness of ME/CFS, it doesn't deserve backlash, etc etc.) Not all comments were so supportive of course, but a lot. We are such vulnerable people.

Edit: OK, since the first time I looked at the comments was a few hours ago, I checked the post again. Fortunately, there are a lot more comments now drawing attention to the potential harm such mind-body therapies can cause and their lack of evidence. Phew. Early in the morning the thread looked very different and I thought all hope was lost if so many people in the community (followers of the MEA) just accept these therapies at face value. The early morning comments were quite shocking to read.
 
I've just caught up with the thread. That Long Covid Advocacy piece discussed back a bit is very impressive. e.g
And if we can use our thoughts and intentions to alter the growth of bluebells and rice, like you state in your book. Then it is not long till women (and it’s always women) are blamed for ruining the harvest, spoiling the milk and to blame for their neighbours’ illness or the latest plague. There’s perpetually a bum deal for women and witchcraft.
Click to expand...
 
Hutan said:
I've just caught up with the thread. That Long Covid Advocacy piece discussed back a bit is very impressive. e.g
Click to expand...
I found it a bit convoluted and it lost me in a number of places but some key points were strongly made.


"I’m so flippin excited that it’s slowly filtering down from neuroscientists’ studies over the last four or five decades to GP surgeries and becoming the understood universal answer in the healing of many chronic illnesses,in particular ME/CFS, fibromyalgia, food and chemical insensitivities, and now long Covid.
Miranda.

We do not have a cure, an answer or even safe care, so I’m not sure who told you there is a universal answer?

Because there are 2 million with Long Covid over a million with ME and we are still starving to death in hospitals being looked after by psychiatrists. We are in a crisis and we need all hands on deck to find something that works. And we definitely do not need anymore brain rewiring workbooks. Can you see the disconnect? People are fighting not to die in hospital and you release your book saying behavioural mind-body interventions are needed. That not being able to say no is the root cause of your ME-induced Lyme. "
 
Peter Trewhitt said:
This article could be a puff piece for Simon Wessely:



But the rest is behind a paywall.

However it seems very SMC in its tone.

[added - Clare Wilson has also written an article supportive of the idea of giving the unemployed weight loss injections - https://inews.co.uk/news/weightloss-jabs-jobless-back-work-3324712 ]
Click to expand...
Well that article obviously can't be true since he had loudly announced in 2002 that he had retired from research on ME and this was published in 2009.

It couldn't be that he *gasp* lied?!
 
I’m no scientist but I’m thinking of having a go at this rice theory. So I just make some rice and I guess leave two bowls in about the same place? But one I am going to quietly verbally abuse. And the other, I will whisper sweet nothings to.
I wonder why people in the olden days didn’t just say nice things to rice, we’d never have needed to invent fridge freezers then.
 
MrMagoo said:
I’m no scientist but I’m thinking of having a go at this rice theory. So I just make some rice and I guess leave two bowls in about the same place? But one I am going to quietly verbally abuse. And the other, I will whisper sweet nothings to.
I wonder why people in the olden days didn’t just say nice things to rice, we’d never have needed to invent fridge freezers then.
Click to expand...

Isn’t cooked rice prone to getting a bacteria that can be fatal to humans? So can I either suggest you confine these verbal interactions to uncooked rice or alternatively get a glass doored fridge for this purpose.
 
Peter Trewhitt said:
Isn’t cooked rice prone to getting a bacteria that can be fatal to humans? So can I either suggest you confine these verbal interactions to uncooked rice or alternatively get a glass doored fridge for this purpose.
Click to expand...
I’m not eating it! Apparently, the rice I call a “good-for-nothing See You Next Tuesday” will look visibly degraded, as compared to my special-wecial true love rice.
 
You must log in or register to reply here.
Back
Top