MECFS data analysis thread

[Yann04]

As for ME/CFS since we have so little findings, I think it would also be cool if patients could enter their own data, like blood tests and stuff, would maybe lead to interesting data, who knows. Or maybe the data would be so muddled by medications and undiagnosed comorbidities it would be useless?

 

[Trish]

As for ME/CFS since we have so little findings, I think it would also be cool if patients could enter their own data, like blood tests and stuff, would maybe lead to interesting data, who knows. Or maybe the data would be so muddled by medications and undiagnosed comorbidities it would be useless?

An ethical minefield, I think.
Much better for such data collection to be done systematically by researchers.